Spotlight: Hearing in the European Parliament: “Defend the Right of Independent Living – How the EU’s austerity policy is undermining the lives of people with disabilities.”

On the 9th February 2012 ENIL and the European parliamentary group GUE/NGL (European United Left/Nordic Green Left) held a hearing in the European Parliament. The purpose of this hearing was to show from a number of perspectives how people with disabilities are being negatively affected by the EU current austerity policies. This is the first time that ENIL has held a hearing in the European Parliament. ENIL presented its ‘Proposal for a European Parliament Resolution’ on the effect of the cuts. The hearing was received positively in the European Parliament and three Members of the Parliament participated in the hearing, Kartika Liotard, MEP, Netherlands, Cecilia Wikstrom, MEP, Sweden and Paul Murphy, MEP, Ireland. The hearing was streamed live and there was up to two hundred people watching online throughout the hearing, with approximately eighty people in the Parliament itself.

The hearing began on a optimistic tone with MEP Cecilia Wikstrom’s opening address in which she made it clear that the although the financial climate is affecting every faction of society that hope is necessary at this time.

Panel 1: Understanding the impact of austerity measures on persons with disabilities

The hearing was in two parts with two different panels. Understanding the impact of the austerity measures on persons with disabilities was the focus of the first panel. Throughout this first panel, four themes emerged; (a) disability and policy, (b) de-institutionalisation, (c) disability and the media and (d) individual accounts that were shared.

(a)   Disability and Policy: Since the financial crisis there has been an impact on the way in which policy has been implemented, interpreted and devised. One of the most important issues raised by Prof. Alan Roulstone (Expert on global and European disability policy)  was that short term cuts often ignore the long term benefits. These policy decisions do not just have economical effect, but social and political effects. John Evans OBE ( Advisory Board member of ENIL)  noted that throughout this financial crisis, it is the welfare systems that have been hit hardest and further reductions would increase poverty. He pointed out that many of these cuts have been made without any dialogue between governments and those whose benefits they are cutting. John Evans further argued, Independent Living has positively changed people’s lives, however some people are now struggling to survive. Click here to read more.. »

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Disability watchdog: Update on current events in Hungary

“We would like to make you aware of current concerns that disabled people in Hungary are faced with. Recently the Hungarian Government changed the whole disability pension system, which will be a lot worse than the previous system especially for disabled people. The biggest changes are connected to the rights that arise from the pension system. According to the new system the 1st and 2nd disability groups will remain unchanged, but persons belonging to the 3rd group will be reviewed and according to the decision of the reviewing committee some of them will no longer receive the pension as they did according to the old system. Those who fall out of the 3rd disability group under this new system will be obliged to take part in a rehabilitation programme at the end of which it is intended that they find employment in the labour market. However considering the current situation even non-disabled well-trained persons with university degrees can’t find employment as at the present time in Hungary it is almost impossible to find employment, similar to what is happening in the rest of Europe.

 

In addition to that there has also been the introduction of new regulations for people with serious physical disabilities obtaining a new car. These regulations effectively mean that the individuals who the car is for will not be able to use it themselves because it will only be possible to get small cars that are not big enough to take wheelchairs. Furthermore the cars will not be adapted or automatic and the monthly rate to obtain a car is very high.

 

In the case of obtaining a used car (second hand car), the amount of co-financing was raised to 2000 EUR, however this amount must represent at least 60% of the full price with the other 40% paid by the applicant.

 

Changes in repairing (servicing) of technical devices have also been introduced together with the new disability pension system. According to this new system for example:

For repairing a wheelchair, the travel costs for the mechanic to get to the person and the wheelchair that needs to be repaired, will have to be paid by the user as the Health Insurance system will no longer cover such expenses. In practice this new system will mean that if someone has a scooter financed by the Health Insurance Company, that person will not be able to claim for a wheelchair from the Health Insurance Company; although for many of us this is necessary in addition to a scooter to maintain our independent living.”

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Disability watchdog: Giovanni is losing his personal assistance

Photo: Jessica Linder Jansson

Since 2006, 14 year old Giovanni has been in receipt of 70 hours of personal assistance per week and has chosen to have his personal assistance through the JAG cooperative. Just before Christmas the National Swedish Social Assurance Agency decided that he no longer qualifies for personal assistance. 

Giovanni depends on continuity because of his disability and he needs personal assistance to be able to manage his daily life.  With personal assistance, his daily life improved significantly, especially since Giovanni’s personal assistants were educated in how to respond to his behaviour to minimize his self-harming when he is not feeling good.

Now, his life is in complete chaos.  Without his personal assistants, his problems are starting again. Giovanni’s outward behaviour is escalating and he is starting to hurt himself again. Giovanni’s mother appealed to court to review the decision but does not know how long this process will take.  Meanwhile Giovanni is living his life without personal assistance.

Previously Giovanni’s mother was employed as one of her son’s personal assistants.  Now she’s unemployed but she can’t take another job because then Giovanni would be left alone.  Another issue with this is that now Giovanni can’t choose who he would like to assist him.

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Press release: ENIL and European United Left/Nordic Green Left Hold a Parliamentary Hearing on the Impact of EU’s Austerity Policy on Persons with Disabilities

On 9 February 2012, the European Network on Independent Living (ENIL) and the group of the European United Left/Nordic Green Left are holding a hearing in the European Parliament entitled ‘Defend the Right of Independent Living – How the EU’s austerity policy is undermining the lives of people with disabilities’. Some of the leading European independent living and anti-poverty activists will present evidence of the impact EU’s austerity policy has had on disabled people in the Member States and together with Members of the European Parliament identify actions to be taken at the European level.

 

‘With or without the financial crisis, we are among the poorest and most socially excluded in Europe’, warned Jamie Bolling, ENIL’s Executive Director. According to the EU Disability Strategy 2010-2020, the incidence of poverty for persons with disabilities is 70 per cent higher than average. Employment rates for persons with very severe and severe disabilities are respectively 19.5 per cent and 44.1 per cent. Combine this with the cuts to essential services such as personal assistance, access to employment and housing support, and the consequences could be catastrophic.

Click here to read more.. »

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Hearing in the European Parliament

February 8, 2012 under Disability Cuts in Europe, Human Rights, News

 

Thursday 9 February 2012 – European Parliament Brussels

 To watch the video of the hearing,

please click on the following link

http://bambuser.com/v/2354346#t=4100s.

See the Press Release here

The European Network on Independent Living (ENIL) would like to invite you to a hearing in the European Parliament entitled ‘Defend the Right of Independent Living – How the EU’s Austerity Policy Is Undermining the Lives of People with Disabilities’. The hearing will take place on 9 February 2012 (15:00 – 18:30, Room A1G2), and will be hosted by the European United Left/Nordic Green Left Parliamentary Group.

ENIL and its partner organisations will present evidence about the impact austerity measures are having on people with disabilities in the European Union, and will set out actions that can be taken by the European Parliament and the European Commission to address this situation. These will include the ENIL Proposal for the European Parliament Resolution on the effect of cuts in public spending on services for persons with disabilities in the EU.

To register, please send an e-mail by 2 February 2012 to secretariat@enil.eu. In case you do not have access to the Parliament, please include your date of birth and passport number.

Download the Programme (Updated!) and the Poster.

See ENIL’s Proposal for a Resolution of the European Parliament on the effect of cuts in public spending on persons with disabilities in the European Union. (Available in 8 EU languages)

Help us to lobby EU politicians for our rights!

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Recommended reading. ‘Responsible Reform. A Report on the proposed changes to Disability Living Allowance’

February 1, 2012 under Disability Cuts in Europe, IL Materials, News, WRT

‘Responsible Reform. A Report on the proposed changes to Disability Living Allowance’
This report is a comprehensive presentation of the most relevant evidence available on Disability Living Allowance (DLA) and the proposals to replace it with a new benefit, Personal Independence Payments (PIP).
It gathers together existing information and analyses over 500 group responses to the Government’s Response to Disability Living Allowance reform (obtained under FOI request 989).
Download the report.

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Save the date: Online seminars on the UNCRPD

The Scottish Human Rights Commission and the Equality and Human Rights Commission are holding a series of free online seminars about how the UN Disability Convention relates to what disabled people have told the Commission’s are the main barriers remaining to allow disabled people in Scotland to enjoy the full range of rights to which they are entitled. The first of these took place in December and you can watch or listen to a recording of the seminar.

 

The next seminar will take place on Monday 16 January and will discuss ‘Getting Justice’. The guest speaker will be from the Legal Services Agency and the seminar will cover some of the evidence disabled people have already told the Commission’s about access to justice – such as concerns from learning disabled people about using and accessing the court system, fears about reporting harassment and alternatives to court action – then the seminar will outline what the Convention says about access to justice and about how the Convention could be used in Scotland. During the discussion you can ask questions, suggest action that needs to be taken and share your own experiences. Click here to read more.. »

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ENIL Hearing on Cuts at the European Parliament

Save the Date!

9 February 2012, European Parliament

 

On 9 February 2012 ENIL is holding a hearing at the European Parliament entitled ‘Defend the Right of Independent Living – How the EU’s Austerity Policy Is Undermining the Lives of People with Disabilities’. The hearing is hosted by the European United Left / Nordic Green Left Parliamentary Group.

 

ENIL and its partner organisations will use the hearing to present evidence about the impact austerity measures are having on people with disabilities in the EU, and will set out actions that can be taken by the European Parliament and the European Commission to address this situation. These will include the ENIL Proposal for the European Parliament Resolution on the effect of cuts in public spending on persons with disabilities in the EU.

 

The hearing will take place on 9 February, 15:00 – 18:30, at the European Parliament inBrussels. Programme will be available by the 15 January 2012. To register, please write to the ENIL Secretariat at secretariat@enil.eu (please include your nationality, date of birth and passport/ID number, so we can arrange your access into the Parliament). Unfortunately, ENIL cannot cover participants’ travel or accommodation costs.

 

Read the ENIL Proposal

DOC Format

PDF Format

 

Link to a related article: http://www.euractiv.com/socialeurope/europeans-disabilities-terrified-analysis-509471

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Independent Living Fund (ILF) in the UK: DPAC Signature campaign

To add your signature please email mail@dpac.uk.net, or meri.goodman@hotmail.co.uk 

 

‘DPAC Independent Living Fund letter

Thousands of disabled people rely on funding from the Independent Living Fund to enable them to live independently with choice and control over their lives. ILF users have been left shocked and extremely anxious since it was announced in 2010 that it would be closed down by government in 2015. Already closed to new applicants since May 2010 this decision was taken with no evidence of an equality impact assessment having taken place nor any consultation carried out with current and potential beneficiaries of the fund.

 “The Independent Living Fund is a ring fenced resource, for a priority group of disabled people with high support needs that can provide a better lifestyle and outcomes for service users whose full needs would not be met by local authority funding. “

  Click here to read more.. »

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John Evans from ENIL speaks to Europe about the devastating effect of the cuts

One of the greatest experts on Independent Living, John Evans, uses every opportunity to warn people with disabilities, policymakers and other stakeholders about the effects of the cuts in public spending that are going on. In many European countries governments take inhuman, irrational and contra productive decisions to cut budgets that are necessary to make Independent Living possible for people with disabilities.

John Evans was interviewed on this important topic by the EU Fundamental Rights Agency. He also delivered a strong speech on the European Day of People with Disabilities on December 1stin Brussels. (Link in FRA website)

Download the full speech: The impact of the austerity measures on disabled people in Europe

Video: John Evans from the ENIL speaks to the FRA about the economic crisis, during a recent meeting of the FRA’s disability project

http://youtu.be/a1RGHBQOsWo

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