Reminder: Free online seminars on UNCRPD

The Scottish Human Rights Commission (SHRC) and the Equality and Human Rights Commission (EHRC) are hosting a series of four free online seminars. The aim of these seminars is to relate the Disability Convention to what people with disabilities in Scotland have said are the key issues that they face. To date three seminars have taken place; “Rights in a Recession”, “Getting Justice” and the third one on “ Independent Living”.

The third one on ‘Independent Living’ was presented by Independent Living Scotland and the SHRC. This seminar focussed on what the Convention says about Independent Living. It then moved on to give an overview of Independent Living Scotland and it’s history. Finally, it looked at Independent Living and human rights and how to make these rights a reality.

Recording of the seminar of 13th February 2012 about Independent Living, with Pam Duncan from the Independent Living in Scotland Project

The last seminar in the series is on the 12th March 2012, focusing ‘Children and Young people’ and will be streamed live between 12-1.00pm GMT. lt will also be available online after the seminar finishes.

All these seminars are still available online for free along with the presentation slides used in the seminars.

Links:

http://www.scottishhumanrights.com/ourwork/crpd/seminar

www.ilis.co.uk

Follow them on twitter:

@Scothumanrights

@EHRC

     @ilisproject

 

Vanessa Scanlon

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Spotlight: Hearing in the European Parliament: “Defend the Right of Independent Living – How the EU’s austerity policy is undermining the lives of people with disabilities.”

On the 9th February 2012 ENIL and the European parliamentary group GUE/NGL (European United Left/Nordic Green Left) held a hearing in the European Parliament. The purpose of this hearing was to show from a number of perspectives how people with disabilities are being negatively affected by the EU current austerity policies. This is the first time that ENIL has held a hearing in the European Parliament. ENIL presented its ‘Proposal for a European Parliament Resolution’ on the effect of the cuts. The hearing was received positively in the European Parliament and three Members of the Parliament participated in the hearing, Kartika Liotard, MEP, Netherlands, Cecilia Wikstrom, MEP, Sweden and Paul Murphy, MEP, Ireland. The hearing was streamed live and there was up to two hundred people watching online throughout the hearing, with approximately eighty people in the Parliament itself.

The hearing began on a optimistic tone with MEP Cecilia Wikstrom’s opening address in which she made it clear that the although the financial climate is affecting every faction of society that hope is necessary at this time.

Panel 1: Understanding the impact of austerity measures on persons with disabilities

The hearing was in two parts with two different panels. Understanding the impact of the austerity measures on persons with disabilities was the focus of the first panel. Throughout this first panel, four themes emerged; (a) disability and policy, (b) de-institutionalisation, (c) disability and the media and (d) individual accounts that were shared.

(a)   Disability and Policy: Since the financial crisis there has been an impact on the way in which policy has been implemented, interpreted and devised. One of the most important issues raised by Prof. Alan Roulstone (Expert on global and European disability policy)  was that short term cuts often ignore the long term benefits. These policy decisions do not just have economical effect, but social and political effects. John Evans OBE ( Advisory Board member of ENIL)  noted that throughout this financial crisis, it is the welfare systems that have been hit hardest and further reductions would increase poverty. He pointed out that many of these cuts have been made without any dialogue between governments and those whose benefits they are cutting. John Evans further argued, Independent Living has positively changed people’s lives, however some people are now struggling to survive. Click here to read more.. »

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Human rights in Stockholm

February 19, 2012 under Human Rights, News, NRT

Morten Kjaerum, director of the EU Agency for Fundamental rights (FRA) Photo: Justine Balagadde

Last week Morten Kjaerum, director of the European Union Agency for Fundamental rights (FRA), came to Stockholm for two days to meet with ministers, officials and local NGOs working in the field of fundamental rights.

ENIL had the chance to meet with Morten twice during his visit. At first there was a meeting arranged in partnership with the Centre Against Racism. ENIL was represented through Erik Ljungberg, from the ENIL board, Johan Petersjö, a member of JAG and Kerstin Sellin, coordinator for ENIL activities in northern Europe.

AT the meeting Kerstin stressed that fine words cost nothing, but human rights must be paid for.

– To ratify the UN convention is free, but for accessibility and personal assistance you have to dedicate resources, she said.

Photo: Justine Balagadde

Later in the afternoon ENIL was exclusively invited as “FRA associates” to discuss possible future joint working on FRA related events in Sweden. Erik and Kerstin took part in this meeting, held at the ministry of enterprise.

As a part of the FRA advisory board, ENILs director Jamie Bolling was originally invited to the meetings but she was unable to attend.

 

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Disability watchdog: Update on current events in Hungary

“We would like to make you aware of current concerns that disabled people in Hungary are faced with. Recently the Hungarian Government changed the whole disability pension system, which will be a lot worse than the previous system especially for disabled people. The biggest changes are connected to the rights that arise from the pension system. According to the new system the 1st and 2nd disability groups will remain unchanged, but persons belonging to the 3rd group will be reviewed and according to the decision of the reviewing committee some of them will no longer receive the pension as they did according to the old system. Those who fall out of the 3rd disability group under this new system will be obliged to take part in a rehabilitation programme at the end of which it is intended that they find employment in the labour market. However considering the current situation even non-disabled well-trained persons with university degrees can’t find employment as at the present time in Hungary it is almost impossible to find employment, similar to what is happening in the rest of Europe.

 

In addition to that there has also been the introduction of new regulations for people with serious physical disabilities obtaining a new car. These regulations effectively mean that the individuals who the car is for will not be able to use it themselves because it will only be possible to get small cars that are not big enough to take wheelchairs. Furthermore the cars will not be adapted or automatic and the monthly rate to obtain a car is very high.

 

In the case of obtaining a used car (second hand car), the amount of co-financing was raised to 2000 EUR, however this amount must represent at least 60% of the full price with the other 40% paid by the applicant.

 

Changes in repairing (servicing) of technical devices have also been introduced together with the new disability pension system. According to this new system for example:

For repairing a wheelchair, the travel costs for the mechanic to get to the person and the wheelchair that needs to be repaired, will have to be paid by the user as the Health Insurance system will no longer cover such expenses. In practice this new system will mean that if someone has a scooter financed by the Health Insurance Company, that person will not be able to claim for a wheelchair from the Health Insurance Company; although for many of us this is necessary in addition to a scooter to maintain our independent living.”

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Disability watchdog: Giovanni is losing his personal assistance

Photo: Jessica Linder Jansson

Since 2006, 14 year old Giovanni has been in receipt of 70 hours of personal assistance per week and has chosen to have his personal assistance through the JAG cooperative. Just before Christmas the National Swedish Social Assurance Agency decided that he no longer qualifies for personal assistance. 

Giovanni depends on continuity because of his disability and he needs personal assistance to be able to manage his daily life.  With personal assistance, his daily life improved significantly, especially since Giovanni’s personal assistants were educated in how to respond to his behaviour to minimize his self-harming when he is not feeling good.

Now, his life is in complete chaos.  Without his personal assistants, his problems are starting again. Giovanni’s outward behaviour is escalating and he is starting to hurt himself again. Giovanni’s mother appealed to court to review the decision but does not know how long this process will take.  Meanwhile Giovanni is living his life without personal assistance.

Previously Giovanni’s mother was employed as one of her son’s personal assistants.  Now she’s unemployed but she can’t take another job because then Giovanni would be left alone.  Another issue with this is that now Giovanni can’t choose who he would like to assist him.

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Human rights violations in the Czech Republic

Letter about human rights violations in the Czech Republic in the so-called “Homes for the Elderly

This letter is based on my personal experiences and findings in the so-called “Home for the Elderly” in Hermanuv Mestec, which is under the direction of the Prague Municipality.

 

People are placed in these “homes” without knowing what type of institution they are going to. There is no consideration of their age, health condition or their individual needs, which would allow them to continue living, wherever possible, a full life. The leadership of these Homes replaces this with paperwork, in the form of the so-called “individual plans for the clients”. By being placed in the Home for the Elderly, the person – client is deprived of their human rights.

 

In the Home, whether in their own room or in the common areas, the mentally healthy client is often exposed to aggressive behaviour by other clients with mental health problems. Some of them are often under the influence of alcohol, even though they are prescribed various medications.

 

Any complaints about the services or the overall situation in the Home are dismissed by the leadership of the Home. Well founded criticism of the employees is seen as a personal attack.

 

Clients who complain are offered drugs to calm them down, are threatened with going to a psychiatrist, eviction or are outright placed in a psychiatric institution. Possible witnesses are “influenced” by staff members of the Home’s social department in order to change their statement.

 

In case of a suicide of a new client, who hasn’t received enough support in the process of “group integration and using spare time”, the leadership of the Home is trying to evade any responsibility by using fabricated notes about the client’s behaviour, blaming the suicide on the client and their previous family situation.

 

The leadership is evading responsibility also when it comes to other “unusual deaths”, even though a more detailed and objective investigation would show that even in such cases the Home leadership bears a part of the blame.

 

The Director of such Home for the Elderly, who practically cannot be fired, is therefore the master of life and destiny of possibly hundreds of individuals, including the staff, whose favour he is trying to gain by, among other, distributing donations, given by donors in good faith that they will be received only by the clients, especially those most needy.

 

Judging by the reactions of the trustees of these Homes, in this case the Prague Municipality, such treatment of individuals – clients falls under the Quality Care Standards in this type of “institutions”.

 

The leadership of the Home for the Elderly is aware how difficult it is to prove these facts in such institutions and human rights violations, as well as other unacceptable behaviour, which isn’t accepted in a civilised and just society, is commonly experienced in the Czech Republic by regular people, especially those with disabilities. There is no interest or pressure among our public and political representatives to prevent such things from happening.

 

This letter was sent to ENIL by Alojz Janiga and reprinted with his permission.

 

Download the letter

In Czech

In English

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Good news! Bulgaria ratified the UN Convention on Rights of Persons with Disabilities

February 19, 2012 under Human Rights, News, SRT, UNCRPD

Bulgaria has finally ratified the UN Convention on Rights of Persons with Disabilities. After a long and hard battle for the human rights of many disabled people in Bulgaria, Parliament has taken this serious step and ratified the Convention. This historical moment for persons with disabilities in Bulgaria is the first step in finally recognising the rights of disabled people. NGO’s in Bulgaria are now facing the long path ahead of enforcing the articles of the Convention as a real instrument for Independent Living and human rights. The problem is that Parliament has excluded the Optional Protocol from the ratification process. Unfortunately this puts persons with disabilities in Bulgaria in the disadvantaged situation in which they can’t address the UN Committee that’s working on the correct implementation of the Convention. Bulgarian NGO’s will now fight for the inclusion of the Protocol and will pursue the Bulgarian State to take this reasonable step forward. We are just at the start of the path but at least we now see it in front of us.

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Press release: ENIL and European United Left/Nordic Green Left Hold a Parliamentary Hearing on the Impact of EU’s Austerity Policy on Persons with Disabilities

On 9 February 2012, the European Network on Independent Living (ENIL) and the group of the European United Left/Nordic Green Left are holding a hearing in the European Parliament entitled ‘Defend the Right of Independent Living – How the EU’s austerity policy is undermining the lives of people with disabilities’. Some of the leading European independent living and anti-poverty activists will present evidence of the impact EU’s austerity policy has had on disabled people in the Member States and together with Members of the European Parliament identify actions to be taken at the European level.

 

‘With or without the financial crisis, we are among the poorest and most socially excluded in Europe’, warned Jamie Bolling, ENIL’s Executive Director. According to the EU Disability Strategy 2010-2020, the incidence of poverty for persons with disabilities is 70 per cent higher than average. Employment rates for persons with very severe and severe disabilities are respectively 19.5 per cent and 44.1 per cent. Combine this with the cuts to essential services such as personal assistance, access to employment and housing support, and the consequences could be catastrophic.

Click here to read more.. »

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Hearing in the European Parliament

February 8, 2012 under Disability Cuts in Europe, Human Rights, News

 

Thursday 9 February 2012 – European Parliament Brussels

 To watch the video of the hearing,

please click on the following link

http://bambuser.com/v/2354346#t=4100s.

See the Press Release here

The European Network on Independent Living (ENIL) would like to invite you to a hearing in the European Parliament entitled ‘Defend the Right of Independent Living – How the EU’s Austerity Policy Is Undermining the Lives of People with Disabilities’. The hearing will take place on 9 February 2012 (15:00 – 18:30, Room A1G2), and will be hosted by the European United Left/Nordic Green Left Parliamentary Group.

ENIL and its partner organisations will present evidence about the impact austerity measures are having on people with disabilities in the European Union, and will set out actions that can be taken by the European Parliament and the European Commission to address this situation. These will include the ENIL Proposal for the European Parliament Resolution on the effect of cuts in public spending on services for persons with disabilities in the EU.

To register, please send an e-mail by 2 February 2012 to secretariat@enil.eu. In case you do not have access to the Parliament, please include your date of birth and passport number.

Download the Programme (Updated!) and the Poster.

See ENIL’s Proposal for a Resolution of the European Parliament on the effect of cuts in public spending on persons with disabilities in the European Union. (Available in 8 EU languages)

Help us to lobby EU politicians for our rights!

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ENIL at the ‘International Conference on Good Policies for Persons with Disabilities’

On January 22 and 23, 2012 the International Conference on Good Policies for Persons with Disabilities took place for the first time in Vienna, Austria with ENIL participating through Jamie Bolling, the ENIL Executive Director (see her speech). It was part of the Zero Project – zero as in zero barriers (see www.zeroproject.org/ ) with over 250 stakeholders from all over the world. Future legislation for a better world was the main theme. The conference was organised by the Essl Foundation in cooperation with the World Future Council and its founder Jakob von Uexkull, as well as by UniCredit Bank Austria.

One of eight selected laws was the Swedish Act Concerning Support and Service to Persons with Certain Functional Impairments. This is the only legislation covering personal assistance as a right to persons in need.

This law is used as a model within the Independent Living movement. Already since 1993 it legally entitles persons with extensive disabilities to cash payments for the purchase of self-directed personal assistance services. The Act concerning Support and Service to Persons with Certain Functional Impairments sets out the right for persons with considerable and permanent functional impairments to “good” as opposed to basic living conditions through the provision of ten measures for special support. The measure constituting the right to personal assistance has set the foundation for a demand-driven and competitive personal assistance market.

“Independent Living means having the same range of options and the same degree of self-determination that non-disabled people take for granted,” explains Adolf Ratzka, Founder of the Institute on Independent Living. “The Act needs to be further developed: recent restrictive court interpretations highlight the need for re-formulating its original intent and to expand its scope. Especially during the present European Year for Solidarity amongst Generations and Active Ageing we need to promote a wider independence of elderly people from institutionalized living.”

Download Jamie Bolling’s speech Powerpoint

 

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