EDF Job Offer

March 29, 2012 under Human Rights, News

HUMAN RIGHTS OFFICER 

EDF is seeking a Human Rights Officer with good knowledge and experience on human rights, non-discrimination, and equality including gender equality issues. The ideal candidate is:

  • committed to a human rights/social model approach to disability
  • understanding and knowledge of the United Nations Convention on the rights of persons with disabilities
  • with a good understanding of working in the political and civil society environment
  • He/she is able to work effectively in English and French and to assimilate and communicate information.
  • The knowledge of EU policies, EU institutions and procedures will be an important asset.

The European Disability Forum (EDF) is the European umbrella organisation composed of and led by persons with disabilties, representing the interests of 80 million disabled persons in Europe. The mission of EDF is to ensure persons with disabilities full access to fundamental and human rights through their active involvement in policy development and implementation in Europe. EDF works closely with the institutions of the European Union (EU), the Council of Europe and the United Nations.

More information on EDF website here

 

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ENIL’s visit to Belarus: “What is IL and why is it needed?”

Independence Square from the Minsk Hotel

The Office for the Rights of Persons with a Disability (ORPD) in Minsk invited ENIL’s executive director Jamie Bolling to Belarus. The visit took place between 25th and 29th February 2012. The theme for the visit was “What is Independent Living and why is it needed?” The message was communicated through several gatherings bringing together disability organisations and other stakeholders.

On Sunday 26th of February 2012, a round table discussion took place on Enabling Independent Living through Accessibility in Belarus. About 20 people attended from six different organisations. The meeting was an opportunity to share experiences about what is happening in Belarus as well as in other European countries. A number of parent organisations were presented with questions about personal assistance as well as collective living. Before the round table Bolling met with the leaders from the Office for the Rights of Persons with a Disability to explore opportunities for future collaboration between the two organisations. Click here to read more.. »

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European Disability Forum (EDF) answers the Accessibility Act Consultation

March 29, 2012 under Accesibility, Human Rights, News

Over the past three months, the European Commission has run a public consultation on a European Accessibility Act. The Disabled People’s Rights unit within the Directorate-General for Justine, who are leading the consultation, explained that this process is part of the preparatory data collection that will underpin the impact assessment for the development of a European Accessibility Act (EAA). The objective of the EAA will be to improve the accessibility of goods and services in the European market.

It is important that the disabled people’s movement puts forward a vision that is representative of all disabled people to inform the development of such important legislation. A wide consultation has been set up for members of EDF and a final draft response has been discussed by the leaders of the disabled people’s movement during the EDF board meeting earlier this month.

For further information on this consultation and EDF‘s position in relation to the European Accessibility Act please visit their website here.

The EDF response to the European Accessibility Act consultation is also available to download from the EDF website (consultation_FINAL.doc)

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AER Committee two meeting – March 2012 in Joensuu, Finland

March 29, 2012 under ENIL Staff, Human Rights, News, UNCRPD

The spring meeting of the AER Social Policy and Public Health Committee took place in Joensuu, Finland on 19-21 March 2012.  The meeting was an invitation of the region of North Karelia. AER members joined the Conference on perspectives on ageing that was organized in the framework of the European Year 2012 and focused on health and long term care with workshops on equal access to quality care, multi-sector cooperation and empowerment of the users in the development of products and services. This conference was held on March 20th and launched AER’s work on Active and Healthy Ageing, a key political priority for the Committee in 2012 and part of AER’s commitments towards the European Year 2012.

Spring in Joensuu

The Committee’s spring plenary meeting took place on March 19th, 2012 and was an occasion to update members on the latest developments in health and social policy in Europe and in the regions. The new AER Secretary General, Mr. Pascal Goergen, presented his ideas for change that are to be put forward for approval at the General Assembly to take place on March 26th. The post of interim Committee President was filled through the election of Mr. Karsten Uno Petersen from the region of Southern Denmark. The 21st of March was dedicated to study visits in relation to the conference topic.

Mr. Pascal Goergen

Click here to read more.. »

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Struggle for personal assistance in Finland

Finland has a plan to close down all institutions for people with intellectual disabilities by 2020 and that by 2016 no more than 500 persons will be living in institutions.  The close-down of these institutions is a necessity for Finland to be able to ratify the UN convention of the rights of persons with disabilities.

The Social Ministry is currently working on a plan for the transition from institutions to individual housing, with other services, for persons with intellectual disabilities. The JAG Association in Finland has attended a hearing to discuss the draft plan and has also commented in writing on the plan and on the system for personal assistance in Finland.

The JAG Association has in its response to the Social Ministry underlined the importance of that the municipalities, who are responsible for arranging services for persons with disabilities, have enough resources to make sure everyone who is moving out of an institution gets appropriate service and support in their own home. JAG has also argued that personal assistance is often the most suitable service in order for disabled persons to be able to live an independent life, on the same terms as everyone else and that it is extremely important that persons with intellectual disabilities are not excluded from the right to personal assistance.

Source:

From institution to independent living

National plan for development of social services that can replace institutional care

Social ministry 8/2 2012

ISBN 978-952-00-3208-1

 

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Mind Change Conference

The first European Mind Change Conference will take place in Villach, Austria from the 2nd – 4th May 2012.

Mind Change is an NGO that promotes the social inclusion of disabled people. They believe that in order “to achieve a liveable, fearless and equal society for all people including people with disabilities, a public Mind Change is required”.

There will be a broad spectrum of European participants attending the conference including scientists, practitioners, self-advocates, social service representatives and public and political decision-makers. More than fifty academic papers from eleven European countries will be presented. The conference will cover such topics as legal rights and standards, inclusive science and technology and an accessible environment. The conference will also cover areas ranging from inclusive education and employment, to quality of life, health promotion and inclusive communication. Click here to read more.. »

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After-birth abortion or the danger of thought experiments

March 28, 2012 under Human Rights, News, WRT

“Parents should have the right to kill their newborn baby.” So say two academics in an article in the renowned ‘Journal of Medical Ethics’. Their controversial statement provoked a global wave of horror and even death threats.
Alberto Giubilini, Professor at the University of Milan, and Francesca Minerva, from the Centre For Applied Philosophy and Public Ethics at Melbourne University, wrote a provocative essay in which they state that it is morally justifiable for parents to kill their newborn child. The academics argue that “postnatal abortion” should be permissible not only on medical grounds, but also because of social or financial reasons. Even if the parents just did not want their child, it should be possible to let it die, so say Giubilini and Minerva.

In the article, the two also speak about postnatal abortion of children who became ill after the birth. “Some diseases are difficult to detect before birth, or develop only later. Many parents would have chosen abortion if they had known earlier that their child was ill.”

“One example is Down’s Syndrome. Approximately 36% of the parents only know after birth that their child has the syndrome. But meanwhile, not only the parents but also the State has to carry the burden of care. The public interest – that of the parents and society – has priority over that of the child”, said Giubilini and Minerva.

The authors defend that statement by saying that newborn babies, like embryos, have no personality and therefore no sense of their own. Therefore death causes them no moral damage.

The article caused a storm of protest almost immediately and led to the authors receiving death threats. The editor of the Journal of Medical Ethics defended the authors by arguing that they had written down “a thought experiment” and do not necessarily agree with their own reasoning.

‘Absurd’

Click here to read more.. »

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Protest in Germany

Every year around the 5th May, the European day of protest for equal rights for people with disabilities, there are many actions and initiatives of disability organizations in many parts of Germany.

On 10 May 2011 more than 1,000 people with and without disabilities met for a demonstration with the motto “bailout/parachutes for all!” going from the Brandenburg Gate to the Federal Chancellery. Many disability organizations supported the action.

The bailout has grown significantly since then. Nevertheless, it is not available for people with disabilities – in Germany and other European states. On the contrary. Instead of a prompt and full implementation of the UN Convention, the needs of people with disabilities are increasingly being cut due to “austerity measures”.

Therefore, disability organizations call for a the next European protest in 2012, again with the motto “Parachutes/bailouts for all!” on 27 April 2012 from the Federal Chancellery to the Brandenburg Gate in Berlin.

http://www.bi-daheim.de/aufrufe_aktionen/2012_02_08_aufruf.php

 

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Irish MEP’s Discuss European Union Austerity Measures

On the 9th February 2012 ENIL and the parliamentary group GUE/NGL held a hearing in the European Parliament entitled ‘Defend the right of Independent Living – How the EU’s austerity policy is undermining the lives of people with disabilities’.

Before the hearing I met up with two Irish Members of the European Parliament, Mairead McGuinness and Paul Murphy. We discussed the impact of the austerity measures on the lives people with disabilities and the future implications of these measures.

Paul Murphy, MEP was moderator of the second panel which focused on ‘The threat of cuts to the rights of persons with disabilities at the European Level’. Paul Murphy is a member of the Socialist Party in Ireland and is part of the GUE/NGL parliamentary group. This hearing was his first introduction into the area of disability. Paul Murphy said that for him “this is the start of the process of becoming more active in the whole area of disability”.  Mairead McGuinness, MEP is a member of the political party Fine Gael in Ireland and is part of the European Peoples Party (EPP) parliamentary group. She has a long standing interest in disability issues. She supports agencies that work on the ground in EU countries to achieve deinstitutionalisation by raising the issue in the European Parliament.

Peter Lambreghts, ENIL and Onafhankelijk Leven and Paul Murphy,MEP

One of the first issues that I discussed with Paul Murphy was how Europe’s austerity measures could impact on one of the main objectives of the Disability Action Plan (DAP), which is to ‘make equal opportunities for disabled people a reality’. Paul Murphy described how the gap between people’s aspirations and reality is growing as a result of the current financial crisis.  “Unfortunately, the impact of the actions of the Commission and the local government is quite vast and with the crisis the gap has grown even bigger.” He described the situation in Ireland and how those that are most affected by the crisis are moving further away from their hopes.

Click here to read more.. »

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Edward Scissorhands … the cuts in Italy

He couldn’t have done worse than this. The BTP-Bund spread going up and down, the European Central Bank, a crisis in welfare: explain it how you want but at the end of the day there is a scapegoat that has always been used and that’s the weak. In the middle of this, disabled people are to be kept even further away from the rest of society but nevertheless under firm control. We are seen as a problem that has to be increasingly managed as the population ages. This year the situation is even worse, with cuts pushed through based on the invented notion of “fake invalids”.  In effect what we are being told is, sorry, there is a crisis and there is no money left for you. So many human rights written so very nicely but not applied at all. As far as the European Union is concerned the welfare state is not a priority and isn’t on the agenda.

Then Edward moves his scissors. In Italy this has been called the “Save Italy” decree. In effect it is virtually wiping out the social care system. In the South of Italy there was little social care support before the decree, and even less remains now. In the north of Italy there was little and now there will be nothing. For example in Piedmont, by 2004, we had managed to break down the barrier that had traditionally stopped disabled people from accessing a PA allowance and we secured the introduction of a regional decree with a fund of 1 million Euros for 50 disabled people with high levels of support need. By 2011 there were 178 disabled people with personal budgets totaling 2.7 million Euros, protected by special resolution and under the constant monitoring of disabled people’s organisations such as Consequor and FISH. Click here to read more.. »

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