Оn 14 June 2016, an article by Ciara Brennan1 , Rannveig Traustadottir1, James Rice2 and Peter Anderberg3 was published in the ‘Disability and Society’ journal, entitled “Negotiating independence, choice and autonomy: experiences of parents who coordinate personal assistance on behalf of their adult son or daughter”. The article was written as part of a Marie Curie, European project called “Disability Rights Expanding Accessible Markets (DREAM)“. The project aimed to advance knowledge of how to implement Article 19 of the UN Convention on the Rights of Persons with Disabilities (CRPD) in Europe.
Drawing on key principles of the UN Convention, this article explores personal assistance when a person other than the user coordinates the scheme on their behalf. It is based on qualitative research in Iceland, Norway and Sweden, carried out between 2012 and 2013. Focus is put on non-disabled parents who coordinate personal assistance schemes for their adult son or daughter and the various ways in which they negotiate principles of independence, choice and autonomy.
You can find an html and pdf free versions of the article at this link.
If you have problems with accessing the article or want further information, please contact Ciara Brennan1 at firstname.lastname@example.org
You can find information about ENIL’s research in the area of Personal Assistance in the period 2011-2015 here.
1 Centre for Disability Studies, Faculty of Social and Human Sciences, University of Iceland, Reykjavik, Iceland
2 Department of Anthropology and Department of Disability Studies, Faculty of Social and Human Sciences, University of Iceland, Reykjavik, Iceland
3 Department of Health, Blekinge Institute of Technology, Karlskrona, Sweden
Photo: Ciara Brennan