The European Network on Independent Living (ENIL) joins the European Expert Group on Transition from Institutional to Community-based Care (EEG) in calling upon the Council of the EU and the European Parliament to uphold the ex ante conditionalities relevant to the Structural Funds’ support of community-based alternatives to institutional care for children, persons with disabilities- including intellectual or psychosocial disabilities – and older persons.
The EEG – whose members are nine European non governmental organisations active in the field of social inclusion, non discrimination and fundamental rights, the European Office of the UN High Commissioner for Human Rights and UNICEF – is advocating for Structural Funds to facilitate the social inclusion of children, persons with disabilities – including intellectual or psycosocial disabilities – and older persons, and their access to quality social and health care services in the community, as an alternative to the care provided in segregating residential settings.
For this reason, the EEG has welcomed the inclusion of “transition from institutional to community-based care” within the scope of the European Commission proposals for the new EU cohesion policy 2014-2020. In particular, we have welcomed the thematic ex ante conditionality regarding the objective “promoting social inclusion and combating poverty”, which provides that the national strategies for poverty reduction should include measures for the shift from residential to community based care; as well as the general ex ante conditionality requiring the effective implementation of the UN Convention on the Rights of Persons with Disabilities.
We regret that these two important elements of the ex ante conditionalities have been removed in the compromise text agreed by the Council on 24 April 2012 within the framework of its partial general approach on the EU new cohesion policy .
During the current and past Structural Funds programming periods it has been shown that an appropriate combined use of the ERDF and the ESF can play an important role in supporting Member States’ efforts in moving from institutional to community-based care (a process also known as “deinstitutionalisation”). However, we believe it is crucial that such investments should be planned and implemented in the context of Member States’ structural and strategic reforms, and in line with international human rights standards.
Therefore, we call upon the Council and the European Parliament to do the following:
1. Under the thematic ex ante conditionalities of the objective “promoting social inclusion and combating poverty”, uphold the inclusion of “measures for the shift from residential to community-based care” in the national strategic policy frameworks to tackle poverty and social exclusion. The social inclusion objectives of Europe 2020, which include eradicating child poverty, promoting the active inclusion of the most vulnerable groups, providing decent housing for everyone and overcoming all forms of discrimination, cannot be achieved if the Member States fail to strategically address the situation of over 1,2 million Europeans who live in long-stay residential institutions, segregated from the rest of society.
2. Uphold the general ex ante conditionality requiring the existence of a mechanism which ensures effective implementation and application of the UN Convention on the Rights of Persons with Disabilities. Article 19 of the Convention requires the EU and its Member States to take all appropriate measures to ensure that persons with disabilities can live their lives independently, included in the community. We believe that the existence of the proposed mechanism would help Member States and the European Union comply with this international obligation, by ensuring that all Structural Funds investments in care infrastructure and services promote the enjoyment of fundamental rights and social inclusion of persons with disabilities.
Then Edward moves his scissors. In Italy this has been called the “Save Italy” decree. In effect it is virtually wiping out the social care system. In the South of Italy there was little social care support before the decree, and even less remains now. In the north of Italy there was little and now there will be nothing. For example in Piedmont, by 2004, we had managed to break down the barrier that had traditionally stopped disabled people from accessing a PA allowance and we secured the introduction of a regional decree with a fund of 1 million Euros for 50 disabled people with high levels of support need. By 2011 there were 178 disabled people with personal budgets totaling 2.7 million Euros, protected by special resolution and under the constant monitoring of disabled people’s organisations such as Consequor and FISH. 
On the 9th February 2012 ENIL and the European parliamentary group GUE/NGL (European United Left/Nordic Green Left) held a hearing in the European Parliament. The purpose of this hearing was to show from a number of perspectives how people with disabilities are being negatively affected by the EU current austerity policies. This is the first time that ENIL has held a hearing in the European Parliament. ENIL presented its ‘Proposal for a European Parliament Resolution’ on the effect of the cuts. The hearing was received positively in the European Parliament and three Members of the Parliament participated in the hearing, Kartika Liotard, MEP, Netherlands, Cecilia Wikstrom, MEP, Sweden and Paul Murphy, MEP, Ireland. The hearing was streamed live and there was up to two hundred people watching online throughout the hearing, with approximately eighty people in the Parliament itself.
