News from Slovenia

This time we would like to tell you about about what has been going on over the  past few months in connection with our Independent Living programme. At the end of last year after a long battle lobbying politicians and raising public awareness, we finally succeeded in changing the Law on Ownership Transformation of the Slovenian Lottery, which changes the composition of the Council of the Foundation. The Foundation  funds disability and humanitarian organisations in  Slovenia from concession funds from the Slovenian Lottery. With this change we have succeeded in breaking the monopoly held by the traditional disability organisations  which are united in the National Council of Disability Organisations, and who previously had an absolute majority in the Council of FIHO.

This monopoly allowed  non-transparent and discriminatory distribution of public funds that were supposed to be earmarked. In strong support of our arguments concerning the admissibility of such behavior there were also several judgments of corruption found by  the Commission for the Prevention of Corruption and the Court of Audit. Despite the powerful propaganda by the NSIOS that the proposed changes will decrease the amount of money available for disabled people and their attempts to hold a referendum on the issue, they have been unsuccessfuland MPs overwhelmingly supported the changes. This means that a battle was won, but the war is not over yet.

Click here to read more.. »

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Real progress on Independent Living in Serbia

  1. Three CIL members (from Sombor, Smederevo and Leskovac) are on different lists for local parliament elections in May 2012CIL Serbia Logo

The impact of having Gordana Rajkov as the first disabled MP has led more disabled people to become involved with politics, initially at a local level. Rajkov has influenced the disability movement and policy development at both national and level level, promoting the idea that  “disability could be the investment – not a burden”.

CIL members – Julijana Catalinac from Sombor, Dusko Savic from Smederevo and Svetislav Marjanovic from Leskovac are on the lists of three political parties and have very good chances to become members of local city councils. There are four other DPOs in other Serbian cities who have become politically active for the next elections in May 2012. Click here to read more.. »

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Call for Input into an Online Youth Network

April 27, 2012 under ERT, Good Examples, IL activists, News

International Network for Young Disabled People

We are two disabled young people, planning to set up an international online network for disabled young people aged 16-30, to network, skill and knowledge share. We believe that by providing an interactive space for disabled young people to do so will not only allow young disabled people from around the world to share and in turn, learn new knowledge and skills, but also that it will empower disabled young people to connect and create positive change in their communities. We intend this network to be built and run by disabled young people, for disabled young people.

We are contacting you because of your expertise and we would very much appreciate your input. We have created a questionnaire to help us design the site, which can be found at http://kwiksurveys.com?u=iydpn. The survey is only 9 short questions and will close on 27 May 2012.

We also have a Facebook page that we will be using to keep in touch with people until the site is launched https://www.facebook.com/pages/International-Network-for-Young-Disabled-People/345625542148113

Please forward this information on to anyone you think maybe interested in this project.

Erin and Zara

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Independent Living Conference in Montenegro

Association of Youth with Disabilities Of Montenegro

We would like to inform you about an upcoming conference with the working title “Start up for Independent Living in Montenegro” that will take place in Bar, Montenegro on 24th and 25th May 2012. The conference will be co-organised by ENIL (European Network on Independent living), YHD (Association for Theory and Culture of Handicap) and UMHCG (Association of Youth with Disabilities of Montenegro). YHD is a nongovernmental organisation from Slovenia that has run a programme of Independent Living for disabled people for more than 16 years now including personal assistance for disabled persons. UMHCG runs projects providing support and opportunities to disabled young people to their enhance personal, educational and professional development.http://www.yhd-drustvo.si/

ENIL advocates and lobbies for Independent Living by promoting the values, principles and practices to make full citizenship of disabled people a reality. One of the priorities for ENIL is  to increase the involvement of disabled people within the Independent Living movement and we are therefore trying to increase the participation of disabled people throughout Europe.

This event is organised with the purpose of encouraging and supporting disabled people to stand up for their rights to live independently and for respect for human rights in individual regional countries as well as at a European level.

You are welcome to join us!

 

 

 

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Role model: Meet Marina Vujačić from Montenegro

April 25, 2012 under ERT, IL activists, Role Models

Marina Vujačić, was born on 1986 in Nikšić, Montenegro. She has a graduate degree in sociology.

  • What is your personal experience of disability?

For me, disability is a human rights issue. Or, disability is only one feature or characteristic that makes a person different from the environment in which she lives. I do not think that disability should be a determining factor of human life, and I think that it should never be seen as a problem or obstacle, but as a challenge that encourages us to be strong and fight.

  • How did you discover the Independent Living movement?

I discovered the Independent Living movement through the work of the Association of Youth with Disabilities of Montenegro. I first learned about Ed Roberts and the beginnings of the independent living movement inAmerica. Then I heard a wide range of experiences and witnessed the “fight” of people with disabilities for independent living in Montenegro.

  • Is there an area of Independent Living that you are especially interested in?

Affordable housing and support services, perhaps because inMontenegrothese are not systematically addressed and NGOs need to work hard to improve the situation and achieve independence for people with disabilities.

  • Who has influenced you the most, and how?

I don’t think it was a person, but a book by Katarina Kerčov “The White Graves.” It has deepened my view of the world, changed my way of thinking.

  • What personal achievement are you most proud of?

The courage, fighting spirit, tolerance and understanding.

  • Do you have a favorite saying or proverb?

Never alone, always my own!

  • What motivates you to get up in the morning?

Every new day is a new experience, awaking is knowledge of the world. I like getting up with the thought that I should improve the quality of my life and to help others.

  • What do you like to do when you’re not working?

I watch movies, spend time with my ​​boyfriend, or friends, enjoy walking in the nature.

  • Who would be your ideal dinner guests?

I would like to meet Stephen Hawking, his way of life, thinking…

  • What advice would you give to young adults with a disability?

Never give up! Live your life; don’t let it live you!

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Press release: ‘A path to finding luck – the story of a disabled young man’

March 29, 2012 under ERT, IL activists, News, press release

Danijel Spasojević

infodanijel@gmail.com

Ljubljana, 31.1.2012

Daniel Spasojević is a 26 year old man. When he was 12 years old he was diagnosed with muscular dystrophy. Until recently he lived with his mother in an apartment in Celje where his mother assumed the role of family carer. This means that she provided assistance to him 24 hours a day in return for a minimal income.  For this Daniel could not be more grateful to his mother, as he recognises that without her he could not have obtained everything he has today.

Daniel is a formidable artist. Despite the difficulties of his health condition, Daniel has also had to overcome financial restraints to ensure he has at least the minimum funds needed to finish his projects successfully.

You can see for yourself his video creations from films such as ‘This Is Him’, to the animated YouTube hit: ‘I feel crazy in Slovenia’ which has recorded more than 87,000 hits. Besides being creative he also keeps himself up to date with current affairs, reads books and is active in a number of different humanitarian causes. Click here to read more.. »

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Report on ENIL Independent Living Start Up Conference in Belgrade, Serbia

January 31, 2012 under ERT, Human Rights, IL activists, IL ORGANIZATIONS, News

Extract from the report:

The conference background

The Regional ENIL start up conference on promotion of Independent Living (IL) in Serbia, was organized by Center for Independent Living Serbia (CIL Serbia) organized as a part of the ENIL annual work plan for the East region. The Conference took place in Belgradeon 21st – 23rd December 2011. in Holiday Inn hotel. It was supported by EU Progress Project, TACSO (Technical Assistance for Civil Society Organisations) Serbia Office and CIL Serbia

The purpose of the event

CIL Serbia LogoThe purpose of the event was to provide opportunities for disabled persons fromSerbia,Bosnia and Herzegovina,MacedoniaandBulgaria, to exchange experience on conditions, possibilities and initiatives for IL and personal assistance service in their respective countries. It was planned by ENIL that conclusions of the Conference will be further discussed at the Regional Seminar on IL that should take place at second half of 2012. Click here to read more.. »

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Role model: Meet Suvad Zahirović from Bosnia

December 12, 2011 under ERT, IL activists, Role Models

My name is Suvad Zahirović. I was born in Brcko,Bosnia and Herzegovina on 31st May 1962. I am blind since birth. I  graduated at Faculty for political sciences, at Belgrade University in 1989.  I am living  in Tuzla, Bosnia and Herzegovina, with my wife and daughter.

  • What is your personal experience of disability?

In my childhood, my mother and my sisters always treated me as an equal in a way that they had  their expectations from me and in accordance to that they would have  given to me certain tasks and required fulfillment of those tasks, always having in mind my real abilities and limitations which blindness as type of disability imposes to me. That kind of attitude towards me from my closest family members helped me to feel confident in myself and to feel that I am able to do many things independently, to get a picture about different things and to learn how to establish and to maintain contacts with other people. Click here to read more.. »

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Personal Assistance as a condition of freedom

When we were at the beginning of our struggle for our right to personal assistance and we started looking for role models we began by reading up on the history of the independent living movement. We were very surprised to find out how similar the struggle these pioneers faced was to our humble beginnings. The only difference was that 30 years had passed since their effort had been embarked upon and that socio-economical situation and historical and cultural contexts are now vastly different.

Not only did we have to fight for our right to independent living outside of institutions and to close those institutions down, we were also forced to fight against the experts who would not let us go out of their clinch of treatment. For them, medical model was the ultimate solution and the safest way of maintaining and supporting their illusion of professionalism. We also had to convince politicians that we wanted to live, not merely passively languish, dragging ourselves through life. It was difficult to hammer into their heads why we did not want to live in institutions that they built just for us, so that people can provide care for us and that we are safe from the outside environment. Last but not least, we slowly worked our way to make the public aware that we are nothing special, we don’t demand nothing special and that we just want to live normal lives with all the rights and responsibilities that other people have and that we indeed can take responsibility for our decisions, even though they may seem wrong to them. We are addressing these events in past tense, but the truth is, these issues are still as current today as they were then.  Click here to read more.. »

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YHD: On the remembrance of the 3rd of December

http://www.yhd-drustvo.si/It has been 20 years since the first attempts to implement Independent Living in Slovenia and 15 years since the foundation of YHD – Association for theory and culture of handicap, which is the only organization providing for independent living and personal assistance according to internationally accepted principles and the principles of the European Network on Independent Living, ENIL.

Unfortunately, the Law on Personal assistance has still not been accepted and many rights remain unsolved. Instead of adopting such a law on personal assistance, where the right to live independently binds to the individual needs and with that to enabling empowerment of persons with disabilities in all spheres of social life, we are still tied to the implementation of the program which is still uncertain. At the same time even little progress quickly dies away and rather than trying to build on good practices and programs in the community, we are returning to institutionalization, loss of power of individuals and to strengthen these and other elites – unfortunately also disability elites. As one of the initiators of changes in the funding of disability and humanitarian organizations by foundations FIHO we look forward to the adopted amendments to the Law on changes in ownership of the Lottery of Slovenia, which would enable a more transparent and equitable distribution of funds. But these days we are confronted with the initiative of collecting signatures for a referendum, which traditional disability organizations try to gather by deceiving and lies, with the aim to maintain the existing strength of some traditional disability organizations.

Click here to read more.. »

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