Innoserv project: We are still collecting but will soon be sharing

As most of you know, ENIL was fortunate enough to be included among Europe’s leading universities and some of the key NGO networks that connect social service providers and service users, in exploring theoretical frameworks and good practice examples of innovation in social services.

The consortium partners are currently collecting innovative practice examples and reviewing academic and non-academic literature in 13 languages.  ENIL is focusing on papers in English, French and Croatian.

In our last newsletter, we asked for examples of innovative services that you either receive or know of.  We are now asking you to support our efforts in collecting and reviewing appropriate literature.

Please let us know if you have evaluations, user/beneficiary surveys, service specifications, and/or other documents that you would like to share with us that relate to innovative social services.

Also, if you have ideas on how you can support our effort and contribute to Europe’s knowledge about innovation in the social sector, please contact our researcher Sanja Nikolin at , copying in ENIL’s Executive Director Jamie Bolling,

We will soon be coming to the end of the data collection phase, so please hurry with your contribution!

The next time you hear from us, it will be us sharing what we’ve got with you.  We hope that you will find our materials and examples as inspiring and fascinating as we do.

European Disability Forum (EDF) answers the Accessibility Act Consultation

Over the past three months, the European Commission has run a public consultation on a European Accessibility Act. The Disabled People’s Rights unit within the Directorate-General for Justine, who are leading the consultation, explained that this process is part of the preparatory data collection that will underpin the impact assessment for the development of a European Accessibility Act (EAA). The objective of the EAA will be to improve the accessibility of goods and services in the European market.

It is important that the disabled people’s movement puts forward a vision that is representative of all disabled people to inform the development of such important legislation. A wide consultation has been set up for members of EDF and a final draft response has been discussed by the leaders of the disabled people’s movement during the EDF board meeting earlier this month.

For further information on this consultation and EDF‘s position in relation to the European Accessibility Act please visit their website here.

The EDF response to the European Accessibility Act consultation is also available to download from the EDF website (consultation_FINAL.doc)

Collaboration request for INNOSERV project – report good examples of social innovation

February 1, 2012 marks the beginning of the Social platform on innovative social services or the INNOSERV Project  funded under the European Commission’s Seventh framework programme.  The Project is a unique opportunity for the identification and acknowledgement of innovative services that generate postive outcomes from a service user perspective.  ENIL has found it important to make our voices heard in order for this project to succeed and make a real difference for Independent Living.  We hope you will cooperate with us in this endeavor.

The Project is an attempt to survey the potential for innovative services in the health, education and welfare sectors. This by relying on a combination of academic/policy input, civil society perspectives and empirical knowledge.

Ultimately, information on selected innovative services will be diseminated broadly in easy to read formats that allows communication accross cultural and geographic boundaries, along with evaluation of policy making trends.  Together, practical examples and an overview of academic research will provide substantial input in the EU 2020 strategy.

Partners in implementation  of the project include reputable academic institutions and CSO networks in Europe: Heidelberg University, University of Applied Sciences Hamburg, University of Roskilde, Diakonhjemmet University College, Oslo, Budapest Institute, Instituto per la Ricerca Sociale, University of Southampton, Universite Paris, Pantheon-Sorbonne, European Association of Service Providers for Persons with Disabilities (EASPD), Solidar, and ENIL.

ENIL has through this project a pending task that requires support from the network:

The ENIL network must identify typical innovative practices from the fields of health, education and welfare. ENIL needs to provide at least 16 examples.  So If you have innovative service examples that you would like to share, please just contact us as soon as possible and no later than February 24, 2012, COB.

All questions regarding this initiative should be directed  to  Sanja Nikolin the ENIL researcher for the project at and please copy in Jamie Bolling the director of ENIL.



ENIL at the ‘International Conference on Good Policies for Persons with Disabilities’

On January 22 and 23, 2012 the International Conference on Good Policies for Persons with Disabilities took place for the first time in Vienna, Austria with ENIL participating through Jamie Bolling, the ENIL Executive Director (see her speech). It was part of the Zero Project – zero as in zero barriers (see ) with over 250 stakeholders from all over the world. Future legislation for a better world was the main theme. The conference was organised by the Essl Foundation in cooperation with the World Future Council and its founder Jakob von Uexkull, as well as by UniCredit Bank Austria.

One of eight selected laws was the Swedish Act Concerning Support and Service to Persons with Certain Functional Impairments. This is the only legislation covering personal assistance as a right to persons in need.

This law is used as a model within the Independent Living movement. Already since 1993 it legally entitles persons with extensive disabilities to cash payments for the purchase of self-directed personal assistance services. The Act concerning Support and Service to Persons with Certain Functional Impairments sets out the right for persons with considerable and permanent functional impairments to “good” as opposed to basic living conditions through the provision of ten measures for special support. The measure constituting the right to personal assistance has set the foundation for a demand-driven and competitive personal assistance market.

“Independent Living means having the same range of options and the same degree of self-determination that non-disabled people take for granted,” explains Adolf Ratzka, Founder of the Institute on Independent Living. “The Act needs to be further developed: recent restrictive court interpretations highlight the need for re-formulating its original intent and to expand its scope. Especially during the present European Year for Solidarity amongst Generations and Active Ageing we need to promote a wider independence of elderly people from institutionalized living.”

Download Jamie Bolling’s speech Powerpoint


Research: LGTB Young disabled persons.

This research aims to find out how disabled young people (aged 16 – 25) see themselves, their identities, and their social networks. These networks may contain a variety of people, organisations and services that are an important part of their lives.

There are a few ways in which you may be able to help:

1. Are you disabled LGBT young people aged 16 – 25?.

2. Are you a disabled person between 16-25 years old?

3. Are you a professional who work with/ support disabled young people (aged 16 – 25)?

If you want to take part in this research…

Please send an email if you have any questions about anything on this information sheet, and if you would like to take part in this research!

Research information leaflet for young people

Research Information Sheet for professionals

Submissions for 2011 annual report on hate crimes

The Office for Democratic Institutions and Human Rights (ODIHR) is now preparing the 2011 annual report on hate crimes. The report provides an overview of data collected on hate crimes as well as of responses to combat hate crimes. It will be launched on International Tolerance Day on 16 November 2012.

As in previous years, ODIHR encourages submissions from non-governmental organizations. This year, ODIHR has compiled further information for NGOs, please find more information on TANDIS:,ngo:
– Overview of the hate crime report;
– Frequently asked questions;
– Sample format for collecting information on hate crimes

Information should be sent to no later than 30 March 2012 indicating in the subject line “HCR 2011 (NAME OF YOUR ORGANIZATION)”.

Recent reports


ENIL would like to raise awareness on the work and publications of ESSL. The Essl Family have been involved in social affairs for many years. The Essl Foundation was established in 2007 in order to consolidate the family’s social activities with the mission to remove barriers, especially for disadvantaged persons, and to work for a more just and equal society.
The Zero Project is a project of the Essl Foundation. It allows for a new approach to broad-based advocacy and the work to remove barriers. In 2010 the Essl Social published its Index Pilot Study. This was based on a survey done in cooperation with some 56 NGO organisations around the world on the legal situations and living conditions of persons with disabilities a comparison of social indicators in 15 different countries. The clear appraisal of inequalities and injustices has been found to be an efficient method of advocacy and a way to get the media as well as policymakers interested.

The most recent report can be found on the following website:

ENIL would also like to draw attention to a new guide for the monitoring process of the CRPD.

The guide was developed as part of a project of the Mental Health Initiative and the Law and Health Initiative of the Open Society Public Health Program. The Community for All guide and checklist offers a detailed look at the rights identified in the UN Convention on the Rights of Persons with Disabilities (CRPD), especially Article 19 of the CRPD. The guide and checklist can be used in advocacy work to oblige States to realize the rights. For downloading and more information see the website:

The first World report on disability, produced jointly by WHO and the World Bank, ” suggests that more than a billion people in the world today experience disability.
People with disabilities have generally poorer health, lower education achievements, fewer economic opportunities and higher rates of poverty than people without disabilities. This is largely due to the lack of services available to them and the many obstacles they face in their everyday lives. The report provides the best available evidence about what works to overcome barriers to health care, rehabilitation, education, employment, and support services, and to create the environments which will enable people with disabilities to flourish. The report ends with a concrete set of recommended actions for governments and their partners.
This pioneering World report on disability will make a significant contribution to implementation of the Convention on the Rights of Persons with Disabilities. At the intersection of public health, human rights and development, the report is set to become a “must have” resource for policy-makers, service providers, professionals, and advocates for people with disabilities and their families.”

Jim Mansell Recognised for Outstanding Contribution to Social Care

Jim Mansell, Emeritus Professor of Learning Disability at the Tizard Centre at the University of Kent, and a member of the Advisory Council of the European Coalition for Community Living (ECCL), was awarded the SCIE Knowledge Award for Outstanding Contribution to Knowledge in Social Care for 2011.


The UK’s Social Care Institute for Excellence (SCIE) used its Tenth Anniversary celebration in November to recognise Prof. Mansell’s contribution to knowledge in social care and the impact his work has had on improving the quality of social care provision.


ENIL would like to congratulate Jim on winning this important award!


Further information:

NNDR launched a new webpage and a blog


Nordic Network on Disability Research new website

NNDR is a multidisciplinary network of disability researchers. The purpose of NNDR is to advance research and development in the field of disability. The main meeting place for the network is the biennial NNDR conference.

In order to increase the activity between our conferences, the NNDR launched a new webpage and a blog in October of this year. The intention is to have another forum to present and discuss disability issues. All members are invited to follow the blog written by varying authors, and post comments. It is also possible to get updates on the blog sent by RSS feed.


ENIL is active in the FRA

ENIL is active in the FRA (The European Union Agency for Fundamental Rights) and supports the research the FRA is conducting. The FRA launched a report on ‘The legal protection of persons with mental health problems under non-discrimination law’ in October.


The publication analysed how national and international non-discrimination legislation and case law defines “disability” and the consequences of this for the “duty to provide reasonable accommodation” for people with disabilities in employment.


The findings of the comparative legal research showed that people with mental health problems in the EU can benefit from the prohibition of discrimination on the grounds of disability under EU law.


The research also looked at the duty to provide reasonable accommodation in employment for people with mental health problems. This means, for example, that an employer should consider the needs of employees to enable them to work, such as adapting working hours or some conditions. According to the report, in most EU Member States people with mental health problems can benefit from such “reasonable accommodation” measures at work. Furthermore, some EU Member States are extending these rights to other areas of daily life, such as education and the provision of goods and services, in line with international standards, such as the UN Convention on the Rights of Persons with Disabilities. Such countries includeBelgium,Bulgaria, theCzech Republic,Ireland, theNetherlands,Spainand theUnited Kingdom.


The FRA recommended that other Member States consider the examples given providing even more comprehensive protection.


The FRA is looking at conducting research on the actual experiences of people with mental health problems and people with intellectual disabilities. The results of this research will be made available in 2012. You can find out more about the FRA disability research on the FRA website.


Please find the link to the report mentionned above and web statement:

Common European Guidelines on De-institutionalisation

Through its project the European Coalition for Community Living, ENIL is a member of the Expert Group on the Transition from Institutional to Community-based Care (EEG). The Group, established in 2009 at the initiative of the then Commissioner Spidla, has already produced the Report of the Ad Hoc Expert Group on the Transition from Institutional to Community-based Care (2009).


In order to assist Member States and the European Commission in implementing this Report, the Group decided to draft the Common European Guidelines on De-institutionalisation and the Toolkit on using Structural Funds (and other funding instruments) to support the process of de-institutionalisation. Both publications, as well as an accompanying Training Module are due to be published by September 2012.


Three mutual learning events in three EU countries, as well as two training sessions, will also be organised in the course of the project, in order to present and test all the publications. EEG will be consulting closely with member organisations of the different networks represented in the Group throughout the process.


The publications will encompass children, persons with disabilities, persons with mental health problems and the elderly, and will be produced in partnership of all EEG members: ENIL/ECCL, the European Disability Forum, the Mental Health Europe, Inclusion Europe, the European Association of Service Providers for Persons with Disabilities, Lumos, the European Social Network, the Confederation of Family Organisations in the EU, and UNICEF.

INNOSERV research project for innovative social services

ENIL is proud to be a member of the INNOSERV consortium starting its work in February 2012. A short description of the project follows:

Other members of the consortium are:
• Diakonhjemmet University College, Oslo, Norway
• University of Roskilde, Denmark
• Diakoniewissenschaftliches Institut, Heidelberg University, Germany
• Universite Paris I Pantheon-Sorbonne, Paris, France
• Faculty of Health Sciences, University of Southampton, United Kingdom
• Hochschule für Angewandte Wissenschaften, Hamburg, Germany
• Centre for Social Investement, Heidelberg University, Germany
• Istituto per la Ricerca Sociale, Area Politiche della Formazione e del Lavoro, Bologna, Italy
• Eötvös University, Budapest, Faculty of Social Sciences, Department of Social Work and Social Policy, Budapest, Hungary
• European Association of Service providers for Persons with Disabilities (EASPD), Brussels, Belgium


DREAM – Disability Rights Expanding Accessible Markets

DREAM Project

ENIL is an Associated Partner in the EU funded project DREAM – Disability Rights Expanding Accessibly Markets, led by the Centre for Disability Law and Policy at the National University of Ireland, Galway. During the 3-year project, ENIL will host two early stage researchers (ESRs) – Ciara Brennan and Orla Kelly – based at the University of Iceland. Ciara is focusing on the Right to Independent Living and the development of user-led personal assistance, and Orla will be doing research on ways to advance de-institutionalisation and community living. Both researchers are expected to join ENIL for up to three months in 2012.


The aim of DREAM, a Marie Curie Initial Training Network, is to train the next generation of disability policy entrepreneurs to help drive and sustain the process of positive change across Europe.

The research agenda was crafted to produce tangible recommendations for reform both at EU level and in the Member States and to impart policy entrepreneurship skills to the researchers so that they themselves can become positive agents of change in their future careers.

The research agenda aims to contribute to the goals of EU 2020 in creating a smart, sustainable and inclusive economy of direct benefit to persons with disabilities. It also aims to contribute knowledge, insights and practical recommendations to the implementation of the new EU Disability Strategy (2010-2020) which seeks practical ways to ensure thatEurope’s 80 million persons with disabilities can enjoy all the rights of European citizenship. The research undertaken will also contribute to the ongoing process of finding ways of giving practical expression to the UN Convention on the Rights of Persons with Disabilities at EU level and in the Member States.

The project is implemented in partnership with the Centre for Disability Law and Policy at the National University of Ireland, Galway, Technosite (Spain), Maastricht University (Netherlands), University of Leeds (UK), NOVA Norwegian Social Research, the University of Iceland and Swiss Paraplegic Research.

Project website:

Fundamental Rights of Persons with Intellectual Disabilities and Persons with Mental Health Problems

John Evans, a member of the Advisory Board of ENIL, is representing ENIL and its project ECCL (the European Coalition for Community Living) in the project ‘Fundamental Rights of Persons with Intellectual Disabilities and Persons with Mental Health Problems’, launched by the EU Fundamental Rights Agency in 2009 and finishing in 2012.


The project aims to better understand how the fundamental rights of persons with mental health problems and persons with intellectual disabilities are safeguarded in the EU and where violations of rights occur.


The project consists of legal and social research.


The focus of legal research is on the national and international legal framework, and it is implemented by FRA’s Network of Legal Experts (FRALEX). The first report to come out of this is ‘The Rights of People with Mental Health Problems and Intellectual Disabilities to Take Part in Politics’. (more…)

Active Citizenship & Disability – Toward a 21st Century – Model of Supports for Persons With Disabilities

National University of Ireland Galway’s Centre for Disability Law and Policy

That was the title of the conference presenting the coming book on modern disability services to which ENIL has contributed this year. The book has been written by Dr Andrew Power a former member of the research staff at the National University of Ireland Galway’s Centre for Disability Law and Policy ( and will be published in 2012. The book is an international comparison of the relative reform in support delivery models for people with disability. ENIL contributed to the chapters on Sweden and France. The other chapters will cover Canada, USA, UK and Ireland.


The coming book addresses the issue of a personalisation of supports as a current worldwide trend favouring the meeting of real individual needs as opposed to assumed needs. The new trend is opening up choice in personal living arrangements, being used as a basis for the redesigning of supports enabling active citizenship communities. New language is replacing the language of needs and services with concepts of active citizenship. There is a move from traditional models of support based on group services with limited choice towards giving people more choice and control over the support required to live independently and participate in the community. In terms of what is required for change in this way, there is the need for a wholesale rethink of the nature and operation of the welfare state entailing a more individualised approach to the design of services. This entails more consumer power and choice. In order to achieve this, market forces need to be harnessed.


The United Nations Convention on the Rights of Persons with Disabilities powerfully reinforces the current trends. Article 12 restores voice and power to the individual including voice and power over how services are designed and delivered and Article19 demands that services be closely tied to the achievement of choice and independence as well as community involvement.


The conference in November introducing the book provided a meeting point between theorists who bring important perspectives from the new UN disability convention, policy makers interested in redesigning service delivery models, service providers interested in re-imagining their services in the decades to come and persons with disabilities anxious to ensure that future services are adequate to ensure their right to live independent lives and be included in the community.

Children’s Rights for All!

Inclusion EuropeThere are around one million children with intellectual disabilities throughout the European Union. These children often find themselves subject to discrimination and exclusion from society, and are frequently denied the right to good quality education, healthcare, recreation and services. In many cases, their families are also subject to discrimination and are denied access to adequate financial and emotional support.

In light of this, Inclusion Europe, Eurochild and the Charles University in Prague, embarked upon the research project ‘Children’s Rights for All: Monitoring the implementation of the UN Convention on the Rights of the Child for children with intellectual disabilities’. The project results will be launched at the Final Conference of the project from 20-21 October 2011 in Brussels

Read the complete article and download the program of the conference here

Source of the news Inclusion Europe e-journal

New research about children with disabilities

‘What are the most popular things to do with your family?’

JAG webThe JAG Association in Sweden is collaborating with Jönköping University and two other organizations in a project about children participation in family activities.

The Convention on the Rights of Children inspired Jenny Wilder, PhD in Psychology, Senior Lecturer in Special Needs Education Mälardalen University, and her colleagues to start an inquiry, called PFA-CHILD, on how disabled children do participate in different family activities.

– ‘Family activities are very important, especially for small children. The understanding of the world comes through the close relationship to others’, says Jenny Wilder.

60 families with a disabled child participated in the first inquiry. They answered questions about what activities they did, how often the activity took place and who in the family participated in the activity.  And the most interesting part, with what engagement the child did participate in the activities.

Through the whole inquiry the children’s perspective is the most important, but it is also important to understand how the whole family live together and what they do to enjoy life. (more…)

World Report on Disability by WHO

who logo

World Health Organisation

On the 9th of June at the UN Building in New York, USA the World Report on Disability was launched by the World Health Organization (WHO) and the World Bank.

The report, created with information gathered from different DPOs and researchers all over the world show evidence of the barriers disabled people face continously in their everyday life as well as a concrete set of actions reccommended for governments and their partners.