Launch of ENIL’s 1st Independent Living Survey

On 10th December, the International Human Rights Day, ENIL will launch the results of its 1st Independent Living Survey. The online launch will take place at 15:00 – 17:00 CET.

REGISTRATION is now open: click here.
Agenda: click here.

Confirmed speakers:

Jamie Bolling and Nadia Hadad, ENIL Co-Chairs
Frank Sioen, Advocacy and Policy Coordinator, ENIL
Nina Portolan, ESC Volunteer, ENIL

Sanni Purhonen, Threshold/Kynnys RY, Finland
Simoni Petridisi, activist and Advisor to the President, Georgia
Joao Varela, Centre for Independent Living, Portugal
Marica Miric, Croatian Union of Associations of Persons with Disabilities – SOIH, Croatia

Katarina Ivanković Knežević, Director, DG Employment, Social Affairs and Inclusion, European Commission
MEP Katrin Langensiepen – European Parliament
MEP Marisa Matias – European Parliament
Robert Jan Uhl, Policy Analyst, Fair and Equal Societies, EU Fundamental Rights Agency

Background information:

The aim of the Independent Living Survey, launched by the European Network on Independent Living (ENIL) in June 2020, was to gather data that would allow us to establish to what extent disabled people in Europe had access to the right to live independently and to be included in the community. The survey was open until the end of September, and targeted disabled people and organisations of disabled people in the Council of Europe area. It was available in English, French and German.

 The Independent Living Survey followed Personal Assistance tables, published by ENIL in 2013 and 2015, and has drawn heavily on the PA Checklist – A Tool for Assessing Personal Assistance Schemes, published in 2019. It included additional questions relating to implementation of Article 19 of the UN Convention on the Rights of Persons with Disabilities (CRPD). The survey consisted of two sections: a general section on Independent Living, and detailed information about the personal assistance scheme/policy in a particular country or region. 

 The information received through the online survey was used to draft 44 country sheets, with general information on Independent Living and a description of the personal assistance scheme/policy, where such exists. These are accompanied by a summary of the findings, in the Independent Living Report.

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