COVID-19

Independent Living Resources

In light of the COVID-19 pandemic and the effects emergency measures around Europe are having on disabled people, the European Network on Independent Living has decided to compile resources and statements made by our members. Our focus is primarily on disabled people using personal budgets/direct payments and employing their personal assistants, and who are struggling to retain their independence and continue living safely in their own homes. Should you have anything to share, please write to frank.sioen@enil.eu.

For the Overview of data on the situation of disabled people during the COVID-19 pandemic, click here.

For the joint ENIL/EDF statement on the impact of COVID-19 on support services for disabled people, click here

Belgium

Euronews report on the effect of COVID-19 on disabled people (in English), with testimonies by ENIL members from Spain and Belgium: click here

Statement by GRIP about denial of medical treatment to disabled people (in Flemish): click here

Personal experience: Herman Hillen (video)

Personal experience: Alice

Personal experience: Maxime

United Kingdom

Resource page for people using direct payments to employ PAs: Coronaheroes

Blogpost: What should I do if all my PAs suddenly had to self-isolate?

Personal advice (How to be responsible and aware in the situation of COVID-19): John Evans

Twitter feed on PA experiencing COVID-19 symptoms and no PPE: Fran

Article on the difficult situation disabled people are facing in Scotland, by Jim Elder-Woodward: click here

Spain

Article by the Spanish Forum on Independent Living: click here

Sweden

Personal experience: Mats Karnstrom

Greece

Our former Board member Stelios Kympouropoulos, now a Member of European Parliament, was interviewed by Euronews about COVID-19.

Romania

Together with some organisations of persons with disabilities and other organisations advocating for the rights of persons with disabilities, we sent an urgent appeal to ensure equal access to COVID-19 medical treatment for residents of Sasca Mică Centre and other institutions for persons with disabilities and older persons in Romania: click here

ENIL Youth Network

The ENIL Youth Network organised a webinar on Peer Support in times of crisis (you can watch it here). They announced also a Peer Support initiative for all those that need it in these extraordinary COVID-19 times. If you are interested in either receiving or providing peer support to others, please get in touch with the ENIL Youth Network at: enilyouthboard@gmail.com

Resource pages and statements by other organisations

International Disability Alliance (IDA): click here

European Disability Forum (EDF): click here

World Independent Living Network (WIN) statement: click here

World Health Organisation’s (WHO) Guidelines on ‘Disability Considerations during the COVID-19 Outbreak’: click here

UNICEF Guidelines on COVID-19 for children and adults with disabilities: click here

Joint Statement by the Chair of the UN Committee on the Rights of Persons with Disabilities, on behalf of the Committee on the Rights of Persons with Disabilities and the Special Envoy of the United Nations Secretary-General on Disability and Accessibility on Persons with Disabilities and COVID-19: click here

COVID-19 Disability Rights Monitor

Evidence is emerging that persons with disabilities are being disproportionately affected by the Coronavirus pandemic and emergency measures being taken by governments worldwide. As governments rush to respond to the virus, it is more critical than ever to guarantee that measures taken are fully inclusive of persons with disabilities and prevent human rights violations from taking place.

With the endorsements of the United Nations Special Rapporteur on the Right to Health, Mr Dainius Pūras, and the UN Special Rapporteur on the Rights of Persons with Disabilities, Ms Catalina Devandas Aguilar, a coalition of seven disability rights organisations (ENIL, Validity Foundation, International Disability Alliance, Disability Rights International, Human Rights Centre at the University of Pretoria, the International Disability and Development Consortium and Disability Rights Fund) has launched a major international monitoring initiative on the 20th April 2020 entitled “COVID-19 Disability Rights Monitor” to conduct rapid independent monitoring of state measures concerning persons with disabilities. The first element of this global initiative is the launch of two surveys requesting official information from governments and requesting the testimonies of persons with disabilities and their representative organisations. The surveys aim to collect information about what states are doing to protect core rights of persons with disabilities including the rights to life, access to health and essential services.

The data collected through the surveys can be explored on the COVID-19 DRM Dashboard.

SUPPORT the COVID-19 Disability Rights Monitor by completing the survey, or forwarding it to institutions and organisations in your countries/networks. Guidance Note for DPOs and NGOs on how to support the initiative is available here.