Thematic reports and briefings
The purpose of this report is to analyse how the European Union (EU) implemented the UN Convention on the Rights of Persons with Disabilities (CRPD) between 2015 and 2022. Drawing on existing empirical evidence, the report raises serious concerns about the implementation of the CRPD by the EU. While Article 19 on the right to live independently and being included in the community is the primary focus, the report illuminates how the denial of the right to live independently in the community impacts other fundamental human rights including Article 10, Right to life and Article 15, Freedom from torture or cruel, inhuman, or degrading treatment or punishment. [Word version]
This report, written by the European Network on Independent Living for the European Disability Forum, looks at the use of the European Union (EU) funding for external action. The report sets out to establish if the EU funding supported the process of deinstitutionalisation (DI) globally during 2014 – 2020. This includes the closure of institutions and the development of community-based supports and services, and the prohibition of building or renovating institutions. [Word version] [Easy to Read version, Word document] [ Easy to Read version, PDF document]
The aim of this study, commissioned by the European United Left/Nordic Green Left (GUE/NGL) group in the European Parliament, is to highlight the arguments why ESI Funds should be used to support the right of children, adults and older persons with disabilities to live independently in the community. The study also points to the main problems that arose during the 2014 – 2020 period, and which resulted in the ESI Funds contributing to the continued segregation and exclusion of these groups from society. [Portuguese version]
The summary report of the first results of ENIL’s Independent Living Survey. The aim of the online survey was to collect general information about access to Independent Living of disabled people across Europe, and detailed information about Personal Assistance schemes or systems. [Word version]
The report on the COVID-19 pandemic, presents the findings from a rapid global survey of persons with disabilities and other stakeholders which took place between April and August 2020. [Easy to read version]
The collection of examples (developed by ENIL and the European Disability Forum), collected through a Europe-wide survey in 2017, seeks to promote and encourage the development of policies and measures fostering disabled people’s independence, in line with Article 19 of the UN Convention on the Rights of Persons with Disabilities (CRPD). [Word version]
This briefing highlights action that must be taken if the European Union is to achieve its objective of facilitating disabled people’s transition from institutional care to independent living through the investment of the European Structural and Investment Funds.
This publication shares a glimpse of people who have made ENIL and our movement strong. It could not include everyone but highlights some of the key people who made the European Network on Independent Living what it is today.
This briefing on the European Structural and Investment Funds (ESI Funds) is focused on the monitoring and complaints system, and the extent to which it is able to ensure ESI Funds are used to support independent living.
This reports looks at the main barriers to the realisation of disabled people’s right to live independently and be included in the community, which is set out in Article 19 of the UN Convention on the Rights of Persons with Disabilities (CRPD). [Word version]
This brief analysis shows the initial findings from the survey that ENIL developed to explore positive and progressive examples that can be spread for the goal of combatting disability hate crime.
This short guide focuses on the Optional Protocol to the UN Convention on the Rights of Persons with Disabilities (CRPD). It seeks to explain how the Optional Protocol works, and how it can be used by individuals and organisations to claim their rights under the CRPD. It also provides examples of using the Optional Protocol to successfully challenge human rights violations in the European Union.
Summary of the findings and recommendations from a survey conducted by ENIL in 2016 on the topic of peer support.
The study, commissioned by the Petitions Committee at the European Parliament in July 2016, looks into the main problems with the use of Structural Funds in the EU, when it comes to the rights of people with disabilities and their social inclusion. The report was written by Camilla Parker and Ines Bulic.
This briefing was commissioned by the Petitions Committee at the European Parliament in July 2016, in preparation for the Committee’s fact finding visit to Slovakia in September 2016. The Committee’s visit focused on allegations of the use of Structural Funds into institutions for disabled people. The briefing was written by Camilla Parker, Ines Bulic and Lilia Angelova-Mladenova. To read the report from the fact finding visit, please click here.
A report prepared by ENIL-ECCL on the use of European Structural and Investment Funds (ESIFs) for deinstitutionalisation.
This summary report provides information about access to personal assistance in the following 20 countries: Belarus, Belgium, Bulgaria, Cyprus, Denmark, Estonia, France, Georgia, Greece, Italy, Latvia, Macedonia, Netherlands, Norway, San Marino, Slovenia, Spain, Switzerland, Sweden and the United Kingdom.
This briefing addresses concerns in five Member States: Hungary, Romania, Slovakia, Bulgaria and the Czech Republic. These include: 1) The lack of adequate policies for the replacement of long-stay residential institutions with services that facilitate Independent Living; 2) Inadequacy of existing strategies in the Member States; 3) Lack of coordination between the European Social Fund (ESF) and the European Regional Development Fund (ERDF) in relation to deinstitutionalisation; and 4) Insufficient implementation of the partnership principle.
The survey summarises the available information from eight countries: Belgium (Flemish part), Bulgaria, England, Iceland, Italy, France, Slovenia and Sweden. It aims to provide information about the costs of institutional/residential care and whether disabled people in these eight countries are able to receive support to live independently in the community.
‘Realising the right to Independent Living, Is the European Union competent to meet the challenges?’, ENIL-ECCL Shadow Report on the implementation of Article 19 of the UN Convention on the Rights of Persons with Disabilities in the European Union (2014)
This report considers the action taken by the European Union to implement the rights of disabled people under Article 19 (living independently and being included in the community) of the UN Convention on the Rights of Persons with Disabilities.
This report sets out the findings of a study undertaken on behalf of the United States Agency for International Development (USAID). It considers why there has been so little progress by governments in developing community-based alternatives to institutional care of children and adults with disabilities in the E&E region. The report then suggests the concrete actions needed to provide services and support that enable people with disabilities to experience community living—to live and participate in community life as equal citizens.
This report presents a summary of the research carried out by ENIL from 2011 to 2013 on the situation of personal assistance legislation in Europe. Information was gathered from 22 European countries, including: Belarus, Belgium, Bulgaria, Bosnia and Herzegovina, Cyprus, Denmark, France, Germany, Greece, Iceland, Ireland, Italy, Latvia, Norway, San Marino, Serbia, Slovakia, Slovenia, Spain, Sweden and the United Kingdom.
This briefing highlights the fact that at least €150 million were invested into institutions for disabled people in six EU Member States (Bulgaria, Hungary, Latvia, Lithuania, Romania and the Slovak Republic) during 2007-2013.
A small-scale study, gaging the mood of disabled people and non-disabled people regarding the UN CRPD and its effectiveness so far.
This paper elaborates the human rights argument for the full support of community living and independent living for all disabled people. The paper argues that disabled people do not need to live in institutions excluded from their communities nor have their human rights abused.
Reports from events
A report from the ninth edition of ENIL’s biennial Freedom Drive, held between 1-3 October 2019 in Brussels, Belgium, under the motto “Loud and Proud”.
Detailed report on the activities that took place on the occasion of the sixth European Independent Living Day.
Detailed report on the activities that took place on the occasion of the fifth European Independent Living Day.
Report of the study session held by ENIL and the Erasmus Student Network in cooperation with the European Youth Centre of the Council of Europe. The week-long youth event took place in May-June 2017, in the European Youth Centre Strasbourg, France.
A report from the eighth edition of ENIL’s biennial Freedom Drive, held between 25-28 September 2017 in Brussels, Belgium, dedicated to Martin Naughton – the father of the ENIL Freedom Drive – whom we lost in 2016.
Detailed report on the activities that took place on the occasion of the fourth European Independent Living Day.
Report of the study session held by ENIL and the European Youth Centre of the Council of Europe. The week-long youth event took place in April 2016, in the European Youth Centre Strasbourg, France.
This report gives a detailed account of the events from 30 European countries which joined ENIL in its celebration of the third European Independent Living Day.
A short report summarising the webinar on the topic of co-production that took place on 9th September 2015 as part of the series of webinars held by ENIL.
Report of the study session held by ENIL and the European Youth Centre of the Council of Europe. The project entailed a weeklong study session at the European Youth Centre in Strasbourg with the purpose of encouraging and supporting young disabled people to advocate for human rights in their countries and at European level.
A report from the seventh edition of ENIL’s biennial Freedom Drive, held between 29th September and 1st October 2015 in Brussels, Belgium under the theme “Independent Living – the next generation”.
A report from the 10th anniversary of ENIL’s Freedom Drive. It was held between 9th and 12th September 2013, in Strasbourg, France.
This booklet captures the history of the Freedom Drive and documents the progress that has been made in the Independent Living Movement and how the Strasbourg Freedom Drive has impacted upon this over the last ten years.
These ten demands have been agreed by the ENIL Board to help us ensure that the Independent Living of disabled people is given the attention it deserves by those standing in the European Parliament elections in 2014.
This publication is a resource for state governments and civil society involved in the development of national disability policies and strategies.