De-institutionalisation

Apr 01, 2019,

Support the Petition Challenging the Use of EU Funds for DI in Bulgaria

On 20 September, the European Network on Independent Living (ENIL), the Centre for Independent Living Sofia (CIL Sofia), the Validity Foundation and the Bulgarian Helsinki Committee (BHC) submitted a petition to the Petitions Committee (PETI Committee) at the European Parliament. The petition concerns the planned use of the European Structural and Investment Funds (ESIFs) for…

Feb 28, 2019,

ENIL and FEVI Point to Increasing Institutionalisation in Spain

In view of the upcoming report on the implementation of the UN Convention on the Rights of Persons with Disabilities (CRPD) in Spain, ENIL and FEVI (Federación Vida Independiente) prepared a submission on Article 19 CRPD – the right to live independently and to be included in the community. The Committee on the Rights of…

Feb 28, 2019,

(In)dependent Living in Portugal

Decree-Law No. 129/2017 of October 9(1) embedded the so-called “Independent Living Support Model” in the Portuguese legislation. Even though the model has not been applied yet, it has already been amended by Decree-Law No. 27/2019 of February 14(2). This legislative scenario, which does not even respect basic Personal Assistance requirements, represents an abusive appropriation of…

Feb 11, 2019,

Bulgaria Must Suspend the Construction of 68 Institutions for the Disabled

Brussels and Sofia, 11 February 2019 – The European Network on Independent Living, the Centre for Independent Living Sofia and the Validity Foundation are calling on the Bulgarian Government to immediately suspend a programme which will channel European Structural and Investment (ESI) Funds into the building of a large number of residential care facilities for…

Jan 31, 2019,

Personal Assistance Act becomes a reality in Slovenia!

The struggle for personal assistance has been long and very hard in Slovenia. Our association was a pioneer and for many years we were lonely riders who have been fighting for personal assistance according to the ENIL principles. Our vision of personal assistance as a basic human right, not just as new social right, was…

Jan 31, 2019,

What to Expect from ENIL in 2019?

2019 is a special year for the European Network on Independent Living (ENIL) – we are celebrating our 30th Anniversary! To mark this occasion, we will be taking stock of what has happened during this time, speak to the some of our founders and look at what we can do to make the movement stronger…

Jan 31, 2019,

Joint Appeal to Commissioner to Support Alternatives to Residential Care

On 14 January, ENIL, together with the European Disability Forum (EDF), Disability Rights International (DRI) and the Validity Foundation sent a joint letter to Commissioner for Employment, Social Affairs, Skills and Labour Mobility, Marianne Thyssen. In the letter, we have asked Commissioner Thyssen to maintain the wording in Article 6(2) (Equality between men and women…

Jan 31, 2019,

Protests for Independent Living in Florence

At the end of 2018, the Independent Living Association (Associazione Vita Indipendente ONLUS) held three protests for independent living in Florence, Italy. The protests took place on 20 and 30 November, as well as on 18 December in front of the Regional Council of Tuscany (which is something like a regional parliament), and received significant…

Jan 31, 2019,

Swedish PA Users at Risk of Losing Support

This January, a one-man committee submitted a proposal about the Act on Support and Service for Persons with Certain Functional Impairments to the Swedish government. The proposal entails such severe changes to current rights that – if implemented – big institutions will be built in Sweden again. Above all, there are three suggestions that would jeopardise…

Dec 27, 2018,

Goodbye to 2018 – bring on the New Year!

2018 was a difficult year for ENIL – just before the year began, we learnt that we had lost the European Commission operating grant, which we had for a number of years. So, at the beginning of the year, we had to say goodbye to our Director Zara Todd, who had joined us just a…

Dec 27, 2018,

Government Agrees to Amend Portuguese Law on Independent Living

In the November issue of the Newsletter we wrote about the protest of Eduardo Jorge in front of the Portuguese Assembly on 3 December, the International Day of Persons with Disabilities. Eduardo, who lives in a nursing home, is fighting for his right to choose where and with whom to live. During the protest, he…

Dec 27, 2018,

European Disability and Development Week 2018

With Christmas around the corner, the disability community has gathered in Brussels for the European Disability and Development Week (from 3 December, the International Day of Persons with Disabilities until 7 December, Human Rights Day). For ENIL, the week started on the 2nd of December, when some of the ENIL members, staff and Board came…

Dec 19, 2018,

Right to Live and Grow Up in a Family for All Children

Throughout the world, children with disabilities are separated from families due to stigma, discrimination, and economic marginalization. Children with disabilities are more at risk of being placed in institutions than other children, and they are often left out of deinstitutionalization and community programs. Without community-based supports to help families keep their children with disabilities, children…

Nov 30, 2018,

Portuguese Man to Hold Cage Protest in front of Government

This week, ENIL was contacted by Eduardo Jorge, a disabled activist from Portugal, who asked us to share information about his protest in front of the Portuguese Assembly on the occasion of the International Day of Persons with Disabilities, on 3 December. Eduardo lives in a nursing home and decided to protest in order to…

Nov 08, 2018,

The Purpose and Use of UN Treaty Body General Comments

According to the OHCHR, General comments are a treaty body’s interpretation of the provisions of its respective human rights treaty provisions and thematic issues. As such, the purpose of a General comment is to interpret and clarify substantive provisions, not only with regard to the reporting duties of State parties but also when it comes to…

Oct 31, 2018,

ENIL at the Fundamental Rights Forum

Between the 25th and 27th of September, Nadia Hadad (Board member) and Zara Todd (Senior Advisor) attended the EU Fundamental Rights Agency’s Fundamental Rights Forum in Vienna. Both Nadia and Zara are members of the EU FRA’s Fundamental Rights Platform Advisory Panel. The Forum bought together over 650 human rights champions from civil society, business,…

Sep 27, 2018,

ENIL’s Position on the Proposed EU Funds Regulations

On 29 and 30 May, the European Commission published its proposals for the European Social Fund+ (ESF+), and the European Regional Development Fund (ERDF) and the Cohesion Fund, for the new programming period 2021 – 2027. The two legislative proposals, as well as the Common Provisions Regulation, will be negotiated with the European Parliament and…

Jul 30, 2018,

New Fact Sheet on Independent Living

In cooperation with Inclusion Europe, we drafted a Fact sheet on Independent Living for People with Intellectual Disabilities. The new fact sheet covers the questions of whether people with intellectual disabilities can benefit from independent living, personal assistance, and how they can be supported in making decisions and being in control of their life. Download…

Jun 28, 2018,

Sofia Conference: Do No Harm!

On 8th June, ENIL, the Center for Independent Living Sofia and the European Disability Forum organised a conference on “Investing in Independent Living” in Sofia, Bulgaria. We decided to organise the event for several reasons – the fact that Bulgaria is holding the EU Presidency until the end of this month, to coincide with the publication…

Jun 28, 2018,

EU Funds for Our Rights: June Update

ENIL has been busy with the EU Funds for Our Rights’ Campaign, as we mark the middle of the current programming period and more NGOs come forward with concerns about the use of EU Funds in their countries. On 11 June, we attended a Roundtable Discussion on the Deinstitutionalisation of Social Care in Croatia. The…