Personal Assistance

Apr 30, 2019,

What are your plans for the 5th May?

As you all know, the European Independent Living Day – 5th May is just over a week away. This day will be a great opportunity to present our hopes, wishes and demands concerning Independent Living, the provision of personal assistance and the implementation of the UN Convention on the Rights of Persons with Disabilities (UNCRPD)….

Apr 30, 2019,

Conference: The Present and Future of Personal Assistance in Europe

On 25 March 2019, the European Network on Independent Living (ENIL) hosted an international conference under the heading ‘The Present and Future of Personal Assistance in Europe’. The conference was organised as part of the project ‘User-Led Personal Assistance in the European Union: A Critical Comparative Analysis’, conducted by Teodor Mladenov, Marie Curie Individual Fellow…

Apr 30, 2019,

Russia: Challenges Remain to Realise Independent Living for All

On 11-12 April, ENIL was invited to Moscow, Russia, by the Delegation of the European Union to Russia to participate in the international conference “Rights and Well-Being of People with Disabilities in Russia and the EU” (find here the programme), organized as part of the EU-funded project “Public diplomacy. EU and Russia“. The main topics…

Apr 30, 2019,

ROFA Launches ‘Independent Living for the Future’ Strategy

On 25 April, the Reclaiming Our Futures Alliance (ROFA), in partnership with Disabled People Against Cuts (DPAC) and the TUC Disabled Workers Committee, launched ROFA’s Independent Living strategy, titled ‘Independent Living for the Future – Our vision for a national independent living support system’. The launch took place in the Parliament and was hosted by…

Apr 01, 2019,

Ireland: From CIL to ILMI

2018 was an extremely eventful year for the Independent Living in Ireland. Last July, we changed our name from Centre for Independent Living (CIL) to Independent Living Movement (ILMI) to reflect our all-Island approach. Our vision: An Ireland where disabled persons have freedom, choice and control over all aspects of their lives and can fully participate…

Feb 28, 2019,

Personal Assistance Checklist

In November and December 2018, the European Network on Independent Living (ENIL) piloted the Personal Assistance Checklist (PA Checklist) – a new tool for assessing personal assistance schemes from the perspective of independent living. The PA Checklist was created by ENIL, as part of the project ‘User-Led Personal Assistance in the European Union: A Critical…

Feb 28, 2019,

ENIL and FEVI Point to Increasing Institutionalisation in Spain

In view of the upcoming report on the implementation of the UN Convention on the Rights of Persons with Disabilities (CRPD) in Spain, ENIL and FEVI (Federación Vida Independiente) prepared a submission on Article 19 CRPD – the right to live independently and to be included in the community. The Committee on the Rights of…

Feb 28, 2019,

(In)dependent Living in Portugal

Decree-Law No. 129/2017 of October 9(1) embedded the so-called “Independent Living Support Model” in the Portuguese legislation. Even though the model has not been applied yet, it has already been amended by Decree-Law No. 27/2019 of February 14(2). This legislative scenario, which does not even respect basic Personal Assistance requirements, represents an abusive appropriation of…

Feb 28, 2019,

Working with Allies for Independent Living in Hungary

Our goal to set up the system of Personal Assistance in Hungary has come to a very important stage. On February 14th, we organised a panel discussion for activists and professionals to come together and contribute to form our strategy. The Independent Living of persons with disabilities is what we envision in the long-term future….

Jan 31, 2019,

Personal Assistance Act becomes a reality in Slovenia!

The struggle for personal assistance has been long and very hard in Slovenia. Our association was a pioneer and for many years we were lonely riders who have been fighting for personal assistance according to the ENIL principles. Our vision of personal assistance as a basic human right, not just as new social right, was…

Jan 31, 2019,

What to Expect from ENIL in 2019?

2019 is a special year for the European Network on Independent Living (ENIL) – we are celebrating our 30th Anniversary! To mark this occasion, we will be taking stock of what has happened during this time, speak to the some of our founders and look at what we can do to make the movement stronger…

Jan 31, 2019,

Protests for Independent Living in Florence

At the end of 2018, the Independent Living Association (Associazione Vita Indipendente ONLUS) held three protests for independent living in Florence, Italy. The protests took place on 20 and 30 November, as well as on 18 December in front of the Regional Council of Tuscany (which is something like a regional parliament), and received significant…

Jan 31, 2019,

Swedish PA Users at Risk of Losing Support

This January, a one-man committee submitted a proposal about the Act on Support and Service for Persons with Certain Functional Impairments to the Swedish government. The proposal entails such severe changes to current rights that – if implemented – big institutions will be built in Sweden again. Above all, there are three suggestions that would jeopardise…

Dec 27, 2018,

Goodbye to 2018 – bring on the New Year!

2018 was a difficult year for ENIL – just before the year began, we learnt that we had lost the European Commission operating grant, which we had for a number of years. So, at the beginning of the year, we had to say goodbye to our Director Zara Todd, who had joined us just a…

Dec 27, 2018,

Government Agrees to Amend Portuguese Law on Independent Living

In the November issue of the Newsletter we wrote about the protest of Eduardo Jorge in front of the Portuguese Assembly on 3 December, the International Day of Persons with Disabilities. Eduardo, who lives in a nursing home, is fighting for his right to choose where and with whom to live. During the protest, he…

Dec 27, 2018,

Let’s Talk About Personal Assistance

How to set up the system of Personal Assistance in Hungary for persons with disabilities In the Hungarian disability movement, great work was done by many disabled persons and their allies, for example György Könczei, Pál Gadó, Gábor Zalabai, László Hajdi (ZALABAI P-NÉ 1997). Hungarian IL Centers (ÖÉK) were organized in the ‘90s with the…

Dec 27, 2018,

Promoting Independent Living through Sustainable Development Goals (SDGs)

Building partnerships for the implementation of SDGs and the CRPD As part of this year’s European Disability and Development Week (EDDW), ENIL organised an event on Promoting Independent Living through Sustainable Development Goals (SDGs). It was part of a series of events, addressing disability issues in the context of development cooperation, coordinated by the International…

Nov 30, 2018,

Sweden in Alytus, Lithuania. Is it possible?

It is normal to say that we are still far from Sweden, but we are already very close to Sweden in some areas. At least in Alytus, Lithuania and at least regarding personal assistance services. Is it hard to believe? It is possible, when you want and try to connect the community to a common…

Nov 30, 2018,

Reflections from the 2nd European Independent Living Congress in Valencia

Fifteen years after the first Independent Living Congress in Tenerife, Spain (2003), it was time to reflect on the experience of over 15 years of work – the successes and the mistakes – and the effect these changes have had on people’s lives. ENIL was pleased to be able to support the Congress, which was…

Nov 30, 2018,

Portuguese Man to Hold Cage Protest in front of Government

This week, ENIL was contacted by Eduardo Jorge, a disabled activist from Portugal, who asked us to share information about his protest in front of the Portuguese Assembly on the occasion of the International Day of Persons with Disabilities, on 3 December. Eduardo lives in a nursing home and decided to protest in order to…