There has been little acknowledgement of disabled people’s rights, requirements, and policy needs during the campaigns, negotiations, and agreements that surround the UK’s exit from the EU. The referendum, the transition period, and the subsequent trade deals have not addressed the widespread concerns raised by disabled activists, their organisations, and scholars committed to improving disabled…
At the European Network on Independent Living – ENIL, we take the opportunity at the end of each year to take stock of our achievements, difficulties and whatever else that made the year gone by stand out. The past year, as nobody needs reminding, has been very different, and among those who were lucky to…
On 10 December, the Human Rights Day, the European Network on Independent Living – ENIL published the first results of the Independent Living Survey. The aim of the online survey was to collect general information about access to Independent Living of disabled people across Europe, and detailed information about Personal Assistance schemes or systems. The survey,…
My academic career began in 2010 when I completed a BSc Psychology at Ulster University. My original intention was to train as a Clinical Psychologist, however my undergraduate degree introduced me to the realm of research. I quickly became fascinated with qualitative research methodologies particularly the ways in which we interpret the world around us…
The Threshold Association (or Kynnys ry in Finnish) is a cross-disability organization, which focuses on the basic and human rights of persons with disabilities. It was founded in Helsinki by Kalle Könkkölä and other students with disabilities in 1973. Nowadays the Threshold has offices in Helsinki, Kuopio, Oulu Tampere and Turku. In addition to this,…
On 14 September we organised an online members’ meeting. Adolf Ratzka, a pioneer of the Independent Living Movement in Europe, gave a great speech on how to effectively advocate for PA legislation. It is already mentioned in the respective article, but we decided to publish it also separately because of the high interest of people….
Following on from a successful regional members’ meeting in Poland in 2019, ENIL hosted an online members’ meeting on Monday 14 September, with an accompanying webinar on “Independent Living for All” on Tuesday 15 September. The two-day event was well-attended, and questions and debates were lively. Personal Assistance was in the focus of the discussions,…
My name is Ciara Brennan. I am from Dublin, Ireland. For more than a decade, I have worked as a disability researcher in Ireland, Iceland, Norway, and Sweden. Currently, I am a research and advocacy consultant for the COVID-19 Disability Rights Monitor (DRM). DRM is collecting data from around the world in order to measure…
On 18 June, the European Parliament adopted a progressive Resolution for a new European Disability Strategy post 2020 (further referred to as ‘the Resolution’). ENIL is pleased to see strong emphasis on Independent Living throughout the document. This is particularly visible in three points: deinstitutionalisation with access to services, personal assistance and freedom of movement….
The European Network on Independent Living is launching its first Independent Living Survey, with the aim of getting a better picture of access to Independent Living in Europe. Responses will be analysed and published in December 2020. The Independent Living Survey should be completed by disabled people, DPOs or NGOs familiar with access to Independent…
My experience of disability was shaped, initially, by my personal experience of impairment. Before the introduction to disability politics, my overall perspective was one rooted in the individual model of disability, wrapped in a tragedy narrative. I was ashamed of identifying as a disabled person, professionals and practitioners encouraged me to be passive and dependent,…
My name is Elvira Popa and I have been a wheelchair user for many years, living in Râmnicu-Vâlcea, Romania. Life has been very harsh most of the time and here I am telling one of those episodes when I was kicked down to the ground and left alone to find my way back. 1.The assault The…
This overview provides information about the living situation of disabled people in the European Union during the COVID-19 pandemic. It is based on the data collected by the European Network on Independent Living (ENIL) and the European Disability Forum (EDF), until 15 May 2020. The personal experiences that are part of this overview have been…
When Elena called me on the morning of Wednesday, May 20, I quickly told her I didn’t have time and had pleased her she should be short. This is my standard response to phone calls when I draw. “Wait, I HAVE to tell you that. Emil died tonight. ”At that moment, I collapsed and a…
My pathway to disability research was not a straightforward one but it’s certainly an interesting one. Originally, I had studied international economics at the University of Novi Sad, Serbia, and obtained a master’s degree there but I’ve never seen myself as the practitioner in the field of finance. What’s more, I didn’t exhibit much interest…
COVID has been restricting our travel ability for a while now. To make sure we do not forget the good old time when we could travel through much of Europe without border controls, I will share with you my experience of booking a train and train assistance for a journey from Brussels (Belgium) to Rennes…
We are the FREEkey. We are a team of disabled and non-disabled people. The aim of our bottom-up initiative is to provide services that allow persons with disabilities to live in a self-determined way. This means we want to control our lives, to be able to decide on issues that concern us and are important…
At the outbreak of the COVID-19 pandemic, the disabled people’s independent living movement in Scotland had been making progress, influencing national policy making with the Scottish Government and other strategic policy makers, in a variety of ways. Principally, among such progress, the national pan-disability organisation – Inclusion Scotland – had just started to support a…
When people ask me how I started to work with disabled people’s organisations, my usual answer is that it was an accidental choice. As a skint university student of Hungarian literature and linguistics in Budapest in 1999, I needed a job so I ended up working as a part-time personal assistant to people with severe…
Brussels, 3 April – Advice from governments, in light of COVID 19, has been for people to stay at home. For people belonging to high risk groups, including many persons with disabilities, the message to self-isolate and to stay at a distance from other people has been even clearer, or imposed by law. However, for…
