Independent Living Reading List

Independent Living Reading List

Independent Living (IL) Reading List

(updated on 23 August 2018)

The IL Reading List is created and maintained by the European Network on Independent Living (ENIL) and reflects ENIL’s mission, values and priorities. The list may also contain references to papers that criticise the ideas and practices of Independent Living because we believe that being aware, willing and able to respond to such critiques makes the IL movement stronger.

Currently, the list includes references to paper focusing on the following topics that are closely related to IL:

  • IL movement, philosophy and policy;
  • deinstitutionalisation;
  • personal assistance and direct payments;
  • austerity;
  • the UN Convention on the Rights of Persons with Disabilities (UN CRPD);
  • and Article 19 of the UN CRPD.

At the end, the list also contains references to online libraries and resource repositories.

Where possible, hyperlinks are provided to facilitate open access to information – however, the final versions of some academic papers are available only behind paywalls.

The IL Reading List is a work in progress and does not claim to be comprehensive – the field of IL-related knowledge is vast. We intend to update the list on an ongoing basis, adding new items and topics – as an example, in the near future, we intend to add references to papers on peer support and disability hate crime. People who have suggestions for new references that may be added to the list or for corrections of the existing entries could send their ideas to secretariat@enil.eu.

 IL movement, philosophy and policy

Barnes, C. (2004) ‘Independent Living, politics and implications’, online publication. Leeds: Centre for Disability Studies. Available online at: http://www.leeds.ac.uk/disability-studies/archiveuk/Barnes/Jane’s%20paper.pdf

DeJong, G. (1979) ‘Independent Living: From social movement to analytic paradigm’, Archives of Physical Medicine and Rehabilitation, Vol. 60, No. 10, pp. 435-446. Available online at: https://enablemob.wustl.edu/OT572D-01/RequiredArticles/IndependentLivingFromSocialMovementtoAnalyticParadigm.pdf

DeJong, G., Batavia, A. I. and  McKnew, L. B. (1992) ‘The independent living model of personal assistance in national long-term-care policy’, Generations: Journal of the American Society on Aging, Vol. 16, No. 1, pp. 89-95.

Evans, J. (2002) ‘Independent Living Movement in the UK’, online publication. Leeds: The Disability Archive UK. Available online at: http://disability-studies.leeds.ac.uk/files/library/evans-Version-2-Independent-Living-Movement-in-the-UK.pdf

Jolly, D. (2009) ‘Research Paper on Community Living and the Support of Independent Living: Costs and Benefits’, online publication. Brussels: European Network on Independent Living. Available online at: http://enil.eu/wp-content/uploads/2012/07/Research-paper-on-Community-Living-the-support-of-Independent-Living-Costs-Benefits-text-version.doc

Morris, J. (2004) ‘Independent living and community care: A disempowering framework’, Disability and Society, Vol. 19, No. 5, pp. 427-442. Available online at (behind a paywall): http://www.tandfonline.com/doi/abs/10.1080/0968759042000235280

Ratzka, A. (1996) ‘STIL, the Stockholm Cooperative for Independent Living’, online publication. Stockholm: Independent Living Institute. Available online at: http://www.independentliving.org/docs3/stileng.html

Shaping Our Lives (2016) Disabled Adults and Social Workers Charter and Position Statement. London: Shaping Our Lives. Available online at: https://www.shapingourlives.org.uk/resources/our-resources/all-publications/disabled-adults-and-social-workers

Sumskiene, E. (2017) ‘Advocacy for children with intellectual disabilities: the case of the Baltic states’, in K. Fabian and E. Korolczuk (eds) Rebellious Parents. Parental Movements in Central-Eastern Europe and Russia. Bloomington and Indianapolis: Indiana UP, pp. 248-276. Available online at (behind a paywall): http://www.iupress.indiana.edu/product_info.php?products_id=808402

Williams, G. (1983) ‘The movement for Independent Living: An evaluation and critique’, Social Science and Medicine, Vol. 17, No. 15, pp. 1003-1010. Available online at (behind a paywall): http://www.sciencedirect.com/science/article/pii/0277953683904033

Deinstitutionalisation

Ad Hoc Expert Group on the Transition from Institutional to Community-based Care (2009) Report of the Ad Hoc Expert Group on the Transition from Institutional to Community-based Care. Brussels: European Commission. Available at online at: http://ec.europa.eu/social/BlobServlet?docId=3992&langId=en

Angelova, L. (2008) ‘Patyat kam Mogilino: Ideologiyata na normalnostta i izostavenite detsa na Balgariya’ / ‘The road to Mogilino: the ideology of normality and Bulgaria’s abandoned children’, online publication, in Bulgarian. Sofia: Center for Independent Living. Available online at: http://www.cil.bg/userfiles/nabliudatelnitsa/Putqt_kum_Mogilino.pdf

Center for Independent Living – Sofia (2013) ‘Poveche ot sashtoto ili mimikriyata – bolest po sotsialnite uslugi v Balgariya’ / ‘More of the same or mimicry – a disease of social services in Bulgaria’. Sofia: Center for Independent Living – Sofia. Available online at: http://cil.bg/userfiles/Community-Services-Comparative-Analysis-Final.pdf

Council of Europe, Commissioner for Human Rights (2012) Who Gets to Decide? Right to Legal Capacity for Persons with Intellectual and Psychosocial Disabilities. CommDH/IssuePaper(2012)2. Available online at: https://rm.coe.int/16806da5c0

European Commission (2009) Report of the Ad Hoc Expert Group on the Transition from Institutional to Community-based Care. Brussels: European Commission. Available online at: http://ec.europa.eu/social/BlobServlet?docId=3992&langId=en

European Expert Group on the Transition from Institutional to Community-based Care (2012) Common European Guidelines on the Transition from Institutional to Community-based Care. Brussels:  European Expert Group on the Transition from Institutional to Community-based Care. Available online at: http://www.deinstitutionalisationguide.eu/wp-content/uploads/2016/04/GUIDELINES-Final-English.pdf

Gevorgianiene, V. and Sumskiene, E. (2017) ‘P.S. for post-Soviet: a glimpse to a life of persons with intellectual disabilities’, Journal of Intellectual Disabilities, Vol. 21, No. 3, pp. 235-247. Available online at (behind a paywall): http://journals.sagepub.com/doi/full/10.1177/1744629517701561

Human Rights Watch (2016) “It is My Dream to Leave This Place” – Children with Disabilities in Serbian Institutions.New York: Human Rights Watch. Available online at:  https://www.hrw.org/sites/default/files/report_pdf/serbia0616web_0.pdf

Ignatieff, M. (1983) ‘Total institutions and working classes: a review essay’, History Workshop Journal, Vol. 15, No. 1, pp. 167-173. Available online at (behind a paywall): https://academic.oup.com/hwj/article-abstract/15/1/167/732342/Total-Institutions-and-Working-Classes-A-Review?redirectedFrom=fulltext

Kawamura, H. and Panayotova, K. (2012) ‘Breaking down the barriers: current challenges to disability equality’, The Equal Rights Review, Vol. 9, pp. 165-174. Available online at: http://www.equalrightstrust.org/ertdocumentbank/err9_full.pdf

Kozma, A. and Bulic, I. (2008) Creating Successful Campaigns for Community Living – An Advocacy Manual for Disability Organisations and Service Providers. London: European Coalition for Community Living. Available online at: http://community-living.info/wp-content/uploads/2014/02/ECCL-Manual-final-WEB.pdf

Kozma, A. and Petri, G. (2012) Mapping Exclusion. Institutional and Community-based Services in the Mental Health Field in Europe. Brussels: Mental Health Europe. Available online at: https://issuu.com/silvanamhe/docs/mapping_exclusion

Kozma, A., Petri, G., Balogh, A. and Birtha, M. (2016) The Role of EU Funding in Deinstitutionalisation (DI) in Hungary and the Experiences of the DI Programme so far. Executive Summary. Budapest: Hungarian Civil Liberties Union. Available online at: https://tasz.hu/files/tasz/imce/zarotanulmany_tasz_a4_en_preview_1.pdf

MDAC [Mental Disability Advocacy Centre] (2017) The Charm Toolkit: The Child Human Rights Abuse Removal Monitoring Toolkit. Budapest: Mental Disability Advocacy Centre. Available online at: http://mdac.org/sites/mdac.info/files/charm_en.pdf

Mansell, J., Knapp, M., Beadle-Brown, J. and Beecham, J. (2007) Deinstitutionalisation and Community Living – Outcomes and Costs: Report of a European Study. Volume 2: Main Report. Canterbury: Tizard Centre, University of Kent. Available online at: https://www.kent.ac.uk/tizard/research/DECL_network/documents/DECLOC_Volume_2_Report_for_Web.pdf

Mulheir, G. (2012) ‘Deinstitutionalisation – a human rights priority for children with disabilities’, The Equal Rights Review, Vol. 9, pp. 117-137. Available online at: http://www.equalrightstrust.org/ertdocumentbank/err9_full.pdf

Mulheir, G. & Browne, K. (2007) De-Institutionalising and Transforming Children’s Services: A Guide to Good Practice.Birmingham: University of Birmingham Press. Available online at: https://www.crin.org/en/docs/Deinstitutionaliation_Manual_-_Daphne_Prog_et_al.pdf

Office of the High Commissioner for Human Rights (2011) Forgotten Europeans – Forgotten Rights: The Human Rights of Persons Placed in Institutions. Geneva: OHCHR. Available online at: http://www.europe.ohchr.org/Documents/Publications/Forgotten_Europeans.pdf

Office of the High Commissioner for Human Rights (2012) The Rights of Vulnerable Children Under the Age of Three – Ending Their Placement in Institutional Care. Brussels: Europe Regional Office. Available online at: http://www.europe.ohchr.org/Documents/Publications/Children_under_3__webversion.pdf

Parker, C. (2010) ‘Wasted time, wasted money, wasted lives… a wasted opportunity?’, Tizard Learning Disability Review,Vol. 15, No. 4, pp. 4-14. Available online at (behind a paywall): http://www.emeraldinsight.com/doi/pdfplus/10.5042/tldr.2010.0588

Parker, C. and Bulic, I. (2010) Wasted Time, Wasted Money, Wasted Lives… A Wasted Opportunity? A Focus Report on how the current use of Structural Funds perpetuates the social exclusion of disabled people in Central and Eastern Europe by failing to support the transition from institutional care to community-based services. London: European Coalition for Community Living. Available online at: http://community-living.info/wp-content/uploads/2014/02/ECCL-StructuralFundsReport-final-WEB.pdf

Parker, C. and Clements, L. (2012) ‘The European Union Structural Funds and the right to community living’, The Equal Rights Review, Vol. 9, No. 1, pp. 95-116. Available online at: http://www.equalrightstrust.org/ertdocumentbank/err9_parker_clements.pdf

Phillips, S. D. (2012) ‘Implications of EU accession for disability rights legislation and housing in Bulgaria, Romania,Croatia, and the Former Yugoslav Republic of Macedonia’, Journal of Disability Policy Studies, Vol. 23, No. 1, pp. 26-38. Available online at (behind a paywall): http://journals.sagepub.com/doi/abs/10.1177/1044207311414681

Power, A. (2011) Active Citizenship & Disability: Learning Lessons in Transforming Support for Persons with Disabilities. Galway: National University of Ireland Galway. Available online at: http://studylib.net/doc/14601272/

Pūras, D., Šumskienė, E. and Adomaityte Subaciene, I. (2013) ‘Challenges of prolonged transition from totalitarian system to liberal democracy’, Journal of Social Policy Social Work in Transition, Vol. 3, No. 2, pp. 31-54. Available online at (behind a paywall): https://journals.whitingbirch.net/index.php/JSPW/article/view/414

Shaping Our Lives (2017) Improving Understanding of Service User Involvement and Identity. Report published online. London: Shaping Our Lives. Available online at: https://www.shapingourlives.org.uk/resources/our-resources/all-publications/improving-understanding-of-service-user-involvement-and-identity

Šiška, J. and Beadle-Brown, J. (2011) ‘Developments in deinstitutionalization and community living in the Czech Republic’, Journal of Policy and Practice in Intellectual Disabilities, Vol. 8, No. 2, pp. 125-133. Available online at (behind a paywall): http://onlinelibrary.wiley.com/doi/10.1111/j.1741-1130.2011.00298.x/abstract

Sumskiene, E. (2017) ‘Disability hate crime: the overlooked consequence of the deinstitutionalization of care’, STEPP, No. 15, pp. 70-79. Available online at: http://www.zurnalai.vu.lt/socialine-teorija-empirija-politika-ir-praktika/article/view/10810/8906

Sumskiene, E. and Orlova, L. (2015) ‘Sexuality of “dehumanized people” across post-Soviet countries: patterns from closed residential care institutions in Lithuania’, Sexuality and Culture, Vol. 19, No. 2, pp. 369-387. Available online at (behind a paywall): https://link.springer.com/article/10.1007/s12119-014-9262-1

UNICEF (2010) At Home or in a Home? Formal Care and Adoption of Children in Eastern Europe and Central Asia. Geneva: UNICEF Regional Office for Central and Eastern Europe and the Commonwealth of Independent States. Available online at: https://www.unicef.org/ceecis/At_home_or_in_a_home_report.pdf

Walker, G. (2011) ‘Postcommunist deinstitutionalization of children with disabilities in Romania: human rights, adoption, and the ecology of disabilities in Romania’, Journal of Disability Policy Studies, Vol. 22, No. 3, pp. 150-159. Available online at (behind a paywall): http://journals.sagepub.com/doi/abs/10.1177/1044207311394853?journalCode=dpsa

Woodin, S. (2017) The Charm Toolkit Piloted. Findings from Monitoring Visits: Bulgaria, Czech Republic, Hungary and United Kingdom. Budapest: Mental Disability Advocacy Centre. Available online at: http://mdac.org/sites/mdac.info/files/final_report_en.pdf

Personal Assistance & Direct Payments

 Askheim, O. P., Bengtsson, H. and Bjelke, B. R. (2014) ‘Personal assistance in a Scandinavian context: similarities, differences and developmental traits’, Scandinavian Journal of Disability Research, Vol. 16, No. S1, pp. 3-18. Available online at (behind a paywall): http://www.tandfonline.com/doi/abs/10.1080/15017419.2014.895413

 Barnes, C. (2007) ‘Direct payments and their future: An ethical concern?’, Ethics and Social Welfare, Vol. 1, No. 3, pp. 348-354. Available online at (behind a paywall): http://www.tandfonline.com/doi/abs/10.1080/17496530701603095

Berg, S. (2003) ‘Personal assistance in Sweden’, online publication. Stockholm: Independent Living Institute. Available online at: http://www.independentliving.org/docs6/berg20030520.html

Beresford, P. and Stansfield, J. (2013) ‘Are social care personal budgets working?’, The Guardian, 12 February 2013. Available online at: http://www.theguardian.com/society/2013/feb/12/are-social-care-personal-budgets-working

Bonfils, I. S. and Askheim, O. P. (2014) ‘Empowerment and personal assistance – resistance, consumer choice, partnership or discipline?’, Scandinavian Journal of Disability Research, Vol. 16, No. S1, 62-78. Available online at (behind a paywall): http://www.tandfonline.com/doi/abs/10.1080/15017419.2014.895414

Brennan, C. (2017) The Nordic Experience of Independent Living and Personal Assistance. A Human Rights Approach. Doctoral Dissertation. Reykjavík: University of Iceland.

Brennan, C., Traustadóttir, R., Anderberg, P. and Rice, J. (2016) ‘Are cutbacks to personal assistance violating Sweden’s obligations under the UN Convention on the Rights of Persons with Disabilities?’, Laws, Vol. 5, No. 2, pp. 1-15. Available online at: http://www.mdpi.com/2075-471X/5/2/23/pdf

Center for Independent Living – Sofia (2009) ‘Otsenka na asistentskite uslugi za hora s uvezhdaniya v Balgariya’ / ‘Assessment of the assistant services for people with disabilities in Bulgaria’, online publication, in Bulgarian. Sofia: Center for Independent Living – Sofia. Available online at: http://cil.bg/userfiles/nabliudatelnitsa/ocenka_asistentski_uslugi_BG.rar

DeJong, G., Batavia, A. I. and  McKnew, L. B. (1992) ‘The independent living model of personal assistance in national long-term-care policy’, Generations: Journal of the American Society on Aging, Vol. 16, No. 1, pp. 89-95.

Lyon, J. (2005) ‘A systems approach to direct payments: a response to “Friend or foe? Towards a critical assessment of direct payments”’, Critical Social Policy, Vol. 25, No. 2, pp. 240-252. Available online at (behind a paywall):http://journals.sagepub.com/doi/abs/10.1177/0261018305051328

Mladenov, T. (2016) ‘Governing through personal assistance: a Bulgarian case’, Scandinavian Journal of Disability Research, Vol. 19, No. 2, pp. 91-103. Available online at: https://www.academia.edu/25082429/Governing_through_personal_assistance_a_Bulgarian_case_SJDR_2016_

Mladenov, T. (2016) ‘Marketisation, direct payments, disability justice and austerity’, Discover Society, No. 29, 2 February 2016. http://discoversociety.org/2016/02/02/policy-briefing-marketisation-direct-payments-disability-justice-and-austerity/

Mladenov, T. (2012) ‘Personal assistance for disabled people and the understanding of human being’, Critical Social Policy, Vol. 32, No. 2, pp. 242-261. Available online at: https://www.academia.edu/2046347/Personal_assistance_for_disabled_people_and_the_understanding_of_human_being_Critical_Social_Policy_2012_

Morris, J. (2014) ‘Personal budgets and self-determination’, online publication. Available online at: http://jennymorrisnet.blogspot.co.uk/2014/04/personal-budgets-and-self-determination.html.

Oliver, M. and Zarb, G. (1992) Greenwich Personal Assistance Schemes: An Evaluation. London: Greenwich Association of Disabled People’s Centre for Independent Living. Available online at: http://pf7d7vi404s1dxh27mla5569.wpengine.netdna-cdn.com/files/library/Oliver-personal-assistance-schemes.pdf

Pearson, C. (2000) ‘Money talks? Competing discourses in the implementation of direct payments’, Critical Social Policy, Vol. 20, No. 4, pp. 459-477. Available online at (behind a paywall):http://journals.sagepub.com/doi/abs/10.1177/026101830002000403?journalCode=cspa

Ratzka, A. (2004) ‘Model National Personal Assistance Policy’, a project of the European Center for Excellence in Personal Assistance (ECEPA). Available online at: http://www.independentliving.org/docs6/ratzka200410a.pdf

Ratzka, A. (2004) ‘The Swedish Personal Assistance Act of 1994’. Stockholm: The Independent Living Institute. Available online at: http://www.independentliving.org/docs6/ratzka20040623.html

Ratzka, A. (1993) ‘The user cooperative model in personal assistance: The example of STIL, the Stockholm Cooperative for Independent Living’, online publication. Stockholm: Independent Living Institute. Available online at: http://www.independentliving.org/docs5/ratzka199301.html

Roulstone, A. and Morgan, H. (2009) ‘Neo-liberal individualism or self-directed support: are we all speaking the same language on modernising adult social care?’, Social Policy & Society, Vol. 8, No. 3, pp. 333-345. Available online at (behind a paywall): https://www.cambridge.org/core/journals/social-policy-and-society/article/neoliberal-individualism-or-selfdirected-support-are-we-all-speaking-the-same-language-on-modernising-adult-social-care/B8416B0F6CADECB68B751DA83A56DF33

Spandler, H. (2004) ‘Friend or foe? Towards a critical assessment of direct payments’, Critical Social Policy, Vol. 24, No. 2, pp. 187-209. Available online at: http://clok.uclan.ac.uk/525/1/friend_or_foe_CSP.pdf

Stainton, T. and Boyce, S. (2004) ‘‘I have got my life back’: users’ experience of direct payments’, Disability and Society, Vol. 19, No. 5, pp. 443-454. Available online at (behind a paywall): http://www.tandfonline.com/doi/abs/10.1080/0968759042000235299?journalCode=cdso20

The National Collaborative on Workforce and Disability for Youth (2010) Making the Move to Managing Your Own Personal Assistance Service (PAS): A Toolkit for Youth With Disabilities Transitioning to Adulthood. Washington, DC: Institute for Educational Leadership, HeiTech Services, Inc. and Concepts, Inc. Available online at: http://www.ncwd-youth.info/sites/default/files/pas-toolkit-052610-print-final.pdf

Westberg, K. (2010) Personal Assistance in Sweden. Trans. Susanne Berg. Stockholm: Independent Living Institute. Available online at: http://www.independentliving.org/files/Personal_Assistance_in_Sweden_KW_2010.pdf

IL-related austerity

Aiken, M. (2014) ‘Voluntary services and campaigning in austerity UK: saying less and doing more’, NCIA Inquiry into the Future of Voluntary Services, Working Paper No. 16. Online publication. Available online at: http://www.independentaction.net/wp-content/uploads/2015/01/Say-less-do-more-final.pdf

Brennan, C., Traustadóttir, R., Anderberg, P. and Rice, J. (2016) ‘Are cutbacks to personal assistance violating Sweden’s obligations under the UN Convention on the Rights of Persons with Disabilities?’, Laws, Vol. 5, No. 2, pp. 1-15. Available online at: http://www.mdpi.com/2075-471X/5/2/23/pdf

Dodd, S. (2016) ‘Orientating disability studies to disablist austerity: applying Fraser’s insights’, Disability & Society, Vol. 31, No. 2, pp. 149-165. Available online at (behind a paywall): http://www.tandfonline.com/doi/abs/10.1080/09687599.2016.1152952

Goodley, D., Lawthom, R. and Runswick-Cole, K. (2014) ‘Dis/ability and austerity: beyond work and slow death’, Disability & Society, Vol. 29, No. 6, pp. 980-984. Available online at: http://www.tandfonline.com/doi/pdf/10.1080/09687599.2014.920125?needAccess=true

Hauben, H., Coucheir, M., Spooren, J., McAnaney, D. and Delfosse, C. (2012) Assessing the Impact of European Governments’ Austerity Plans on the Rights of People with Disabilities: Key Findings. Brussels: European Consortium of Foundations on Human Rights and Disability – Bernhard Brunhes International BPI Group. Available online at: http://www.efc.be/publication/assessing-the-impact-of-european-governments-austerity-plans-on-the-rights-of-people-with-disabilities-key-findings/

Mladenov, T. (2016) ‘Marketisation, direct payments, disability justice and austerity’, Discover Society, No. 29, 2 February 2016. http://discoversociety.org/2016/02/02/policy-briefing-marketisation-direct-payments-disability-justice-and-austerity/

Mladenov, T. (2014) ‘Disability and austerity’, Cost of Living, 1 August 2014. http://www.cost-ofliving.net/disability-and-austerity/

Roulstone, A. (2015) ‘Personal Independence Payments, welfare reform and the shrinking disability category’, Disability & Society, Vol. 30, No. 4, pp. 673-688. Available online at (behind a paywall):  http://www.tandfonline.com/doi/abs/10.1080/09687599.2015.1021759

Taylor-Robinson, D., Whitehead, M. and Barr, B. (2014) ‘Great leap backwards: the UK’s austerity programme has disproportionately affected children and people with disabilities’, BMJ, 2014;349:g7350. Available online at (behind a paywall): http://www.bmj.com/content/349/bmj.g7350

UN Convention on the Rights of Persons with Disabilities

Arnardóttir, O. M. and Quinn, G. (eds.) (2009) The UN Convention on the Rights of Persons with Disabilities: European and Scandinavian Perspectives. Leiden and Boston: Martinus Nijhoff Publishers.

Brennan, C., Traustadóttir, R., Anderberg, P. and Rice, J. (2016) ‘Are cutbacks to personal assistance violating Sweden’s obligations under the UN Convention on the Rights of Persons with Disabilities?’, Laws, Vol. 5, No. 2, pp. 1-15. Available online at: http://www.mdpi.com/2075-471X/5/2/23/pdf

European Foundation Centre (2010) Study on challenges and good practices in the implementation of the UN Convention on the Rights of Persons with Disabilities. Executive Summary. Brussels: European Foundation Centre. Available online at: http://efc.issuelab.org/resource/study_on_challenges_and_good_practices_in_the_implementation_of_the_un_convention_on_the_rights_of_persons_with_disabilities_executive_summary

Harpur, P. (2012) ‘Embracing the new disability rights paradigm: the importance of the Convention on the Rights of Persons with Disabilities’, Disability & Society, Vol. 27, No. 1, pp. 1-14. Available online at: https://www.researchgate.net/publication/262971067_Embracing_the_new_disability_rights_paradigm_The_importance_of_the_Convention_of_the_Rights_of_Persons_with_Disabilities

Mladenov, T. (2013) ‘The UN Convention on the Rights of Persons with Disabilities and its interpretation’, ALTER – European Journal of Disability Research. Vol. 7, No. 1, pp. 69-82. Available online at: https://www.academia.edu/2369725/The_UN_Convention_on_the_rights_of_persons_with_disabilities_and_its_interpretation_Alter_2013_

Moriarity, L. and Dew, K. (2011) ‘The United Nations Convention on the Rights of Persons with Disabilities and participation in Aotearoa New Zealand’, Disability & Society, Vol. 26, No. 6, pp. 683-697. Available online at (behind a paywall): http://www.tandfonline.com/doi/abs/10.1080/09687599.2011.602861

UN Office of the High Commissioner for Human Rights (2010) Monitoring the Convention on the Rights of Persons with Disabilities. Guidance for Human Rights Monitors. New York and Geneva: United Nations. Available online at: http://www.ohchr.org/Documents/Publications/Disabilities_training_17EN.pdf

Article 19 of the UN CRPD

Council of Europe Commissioner for Human Rights (2012) The Right of People with Disabilities to Live Independently and be Included in the Community. Strasbourg: Council of Europe. Available online at: https://wcd.coe.int/ViewDoc.jsp?id=1917847

European Coalition for Community Living (2009) Focus on Article 19 of the UN Convention on the Rights of Persons with Disabilities. Available online at: http://community-living.info/wp-content/uploads/2014/02/ECCL-Focus-Report-2009-final-WEB.pdf

Jolly, D. (2009) ‘Personal Assistance and Independent Living: article 19 of the UN Convention on the Rights of Persons with Disabilities’, online publication. Brussels: European Network on Independent Living. Available online at: http://disability-studies.leeds.ac.uk/files/library/jolly-Personal-Assistance-and-Independent-Living1.pdf

Parker, C. (2011) A Community for All Checklist: Implementing Article 19 of the Convention on the Rights of Persons with Disabilities. New York, NY: Open Society Foundations. Available online at: https://www.opensocietyfoundations.org/sites/default/files/community-for-all-checklist-20111202_0.pdf

Parker, C. (2011) A Community for All: Implementing Article 19. A Guide for Monitoring Progress on the Implementation of Article 19 of the Convention on the Rights of Persons with Disabilities. New York, NY: Open Society Foundations. Available online at: https://www.opensocietyfoundations.org/sites/default/files/community-for-all-guide-20111202.pdf

Quinn, G. and Doyle, S. (2012) Getting a Life – Living Independently and Being Included in the Community: A Legal Study of the Current Use and Future Potential of the EU Structural Funds to Contribute to the Achievement of Article 19 of the United Nations Convention on the Rights of Persons with Disabilities. Brussels: Report to the Office of the United Nations High Commissioner for Human Rights, Regional Office for Europe. Available online at: http://www.europe.ohchr.org/documents/Publications/getting_a_life.pdf

Sacco, M. (2018) ‘De-politicisation of human rights: the European Union and the Convention on the Rights of Persons with Disabilities’, Freedom, Security & Justice: European Legal Studies, Vol. 1, No. 1, pp. 147-164. Available online at: http://www.fsjeurostudies.eu/files/FSJ.2018.I.Sacco.9.pdf

Šumskienė, E., Levickaitė, K., Grigaitė, U. and Kelpšaitė, J. (2015) Independent Living and Community Inclusion. Monitoring Implementation of UN CRPD Art. 19 in Lithuanian Social Care Institutions. Vilnius: NGO Mental Health Perspectives. Available online at: http://www.perspektyvos.org/images/failai/dei_report_3.pdf

ONLINE LIBRARIES AND RESOURCE REPOSITORIES

Independent Living Institute: http://www.independentliving.org

‘The Independent Living Institute (ILI) is a policy development center specializing in consumer-driven policies for disabled peoples’ self-determination, self-respect and dignity. We run a virtual library and interactive services for persons with extensive disabilities. We are experts in designing and implementing direct payment schemes for personal assistance services, mainstream taxi and assistive technology.’ (http://www.independentliving.org/indexen.html)

The Disability Archive UK, University of Leeds: http://disability-studies.leeds.ac.uk/library/

‘The aim of the Disability Archive UK is to provide disabled people, students and scholars with an interest in this and related fields, access to the writings of those disability activists, writers and allies whose work may no longer be easily accessible in the public domain. It is hoped that the documents available via the Archive will help to inform current and future debates on disability and related issues. The Archive will be periodically expanded to include other material as and when it becomes available.’ (http://disability-studies.leeds.ac.uk/library/)

Transition Resources, Indiana University Bloomington: https://instrc.indiana.edu/

‘We create and enhance professional development activities and resources to support teachers and, ultimately, students with disabilities as they transition from school to their adult lives, working and participating in their communities, jobs, and/or postsecondary education.’ (https://instrc.indiana.edu/)

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