Independent Living Research Network (ILRN): list of members

Below, only ILRN members consenting to be publicly recognised are listed. For more information about the ILRN, please visit https://enil.eu/projects/independent-living-research-database/ or get in touch with Teodor Mladenov, ILRN Coordinator, at tmladenov001@dundee.ac.uk.

 


Alexa, Radu (Romania, Asociația Help and Advice, asociatia@helpandadvice.ro)

IL expertise:

  • IL movement and philosophy
  • UN Convention on the Rights of Persons with Disabilities

 Angelova-Mladenova, Lilia (UK/Bulgaria, ENIL/independent researcher, lili.angelova@gmail.com)

IL expertise:

  • IL movement and philosophy
  • Deinstitutionalisation
  • Personal assistance and direct payments
  • UN Convention on the Rights of Persons with Disabilities

Recent IL-related publications:


Bolling, Jamie (Sweden, Independent Living Institute, jamie.bolling@independentliving.org)

IL expertise:

  • IL movement and philosophy
  • Deinstitutionalisation
  • Personal assistance and direct payments
  • UN Convention on the Rights of Persons with Disabilities

Brennan, Ciara (Ireland, independent researcher, ciarasbrennan@gmail.com)

IL expertise:

  • Deinstitutionalisation
  • Personal assistance and direct payments
  • UN Convention on the Rights of Persons with Disabilities

Recent IL-related publications:


Burns, Nicola (Scotland, University of Glasgow, nicola.burns@glasgow.ac.uk)

IL expertise:

  • UN Convention on the Rights of Persons with Disabilities

Elder-Woodward, James Ian (Scotland, Scottish independent Living Coalition, jim.elderwoodward@gmail.com)

IL expertise:

  • IL movement and philosophy
  • Deinstitutionalisation
  • Personal assistance and direct payments
  • Austerity
  • UN Convention on the Rights of Persons with Disabilities
  • Neoliberal management of social services

Recent IL-related publications:

  • Elder-Woodward, J., “Disabled people’s Independent Living Movement in Scotland: a time for reflection”, Ethics and Social Welfare, 2016, vol. 10, Issue 3, pp. 252-266 DOI: 10.1080/17496535.2016.1193760
  • Elder-Woodward, J., “Disability and social work”, in Viviene E Cree and Mark Smith (eds.) Social Work in a Changing Scotland (2018) ISBN; 978-1-138-29502-5 (hbk)

Fernández, Andrés (Colombia, Fundación Grandes Transformaciones, andresfmf@yahoo.com)

IL expertise:

  • IL movement and philosophy
  • Personal assistance and direct payments
  • UN Convention on the Rights of Persons with Disabilities

Flanagan, Ann Marie (Ireland, Clare Leader Forum, clareleaderforum@gmail.com)

IL expertise:

  • IL movement and philosophy
  • Deinstitutionalisation
  • Personal assistance and direct payments
  • UN Convention on the Rights of Persons with Disabilities

Grabher, Heinz (Austria, Persönliche Assistenz Vorarlberg, heinz.grabher@pa-vorarlberg.at)

IL expertise:

  • Personal assistance and direct payments

Grdan, Kristijan (Germany, independent researcher, grdjan.kristijan@gmail.com)

IL expertise:

  • Deinstitutionalisation
  • UN Convention on the Rights of Persons with Disabilities
  • Mental health laws

Griffiths, Miro (England, University of Leeds, m.griffiths1@leeds.ac.uk)

IL expertise:

  • IL movement and philosophy
  • Personal assistance and direct payments
  • UN Convention on the Rights of Persons with Disabilities

Grotta, Alessandra (Italy/Sweden, Stockholm University, alessandra.grotta@su.se)

IL expertise:

  • Disability and health inequities

Keravica, Rados (Serbia/UK, University of Leeds, radoskeravica@gmail.com)

IL expertise:

  • Deinstitutionalisation
  • UN Convention on the Rights of Persons with Disabilities
  • Disabled children’s and young people’s participation in decision-making processes, legal capacity and supported decision-making
  • UN Convention on the Rights of the Child

Recent IL-related publications:


Meakin, Becki (UK, Shaping Our Lives, becki@shapingourlives.org.uk)

IL expertise:

  • IL movement and philosophy
  • UN Convention on the Rights of Persons with Disabilities
  • Experiences of service users from marginalised communities

Recent IL-related publications:


Mladenov, Teodor (Scotland/Bulgaria, University of Dundee, tmladenov001@dundee.ac.uk)

IL expertise:

  • IL movement and philosophy
  • Deinstitutionalisation
  • Personal assistance and direct payments
  • Austerity
  • UN Convention on the Rights of Persons with Disabilities
  • IL in the postsocialist region

Recent IL-related publications:


Nally, Deirdre (Ireland, University of Limerick, deirdre.nally@ul.ie)

IL expertise:

  • Personal assistance and direct payments

Recent IL-related publications:

  • Nally, Deirdre, Sean S. Moore, and Rosemary Joan Gowran. “How governments manage personal assistance schemes in response to the United Nations Convention on the Rights of Persons with Disabilities: A Scoping Review.” Disability & Society (2021): 1-24. https://doi.org/10.1080/09687599.2021.1877114

Nikolin, Sanja (Serbia, Public and Private, publicandprivate.nikolin@gmail.com)

IL expertise:

  • UN Convention on the Rights of Persons with Disabilities

O’Neill, Emma (Northern Ireland, Disability Action Northern Ireland, EmmaONeill@disabilityaction.org)

IL expertise:

  • IL movement and philosophy
  • Personal assistance and direct payments
  • UN Convention on the Rights of Persons with Disabilities

Recent IL-related publications:


Panayotova, Kapka* (Bulgaria, Centre for Independent Living – Sofia)

IL expertise:

  • IL movement and philosophy
  • Deinstitutionalisation
  • Personal assistance and direct payments

*Sadly, Kapka passed away in October 2021. Tributes to Kapka’s activism and thought can be found in ILI’s Disability Rights Defenders Newsletter.


Parker, Camilla (UK, Just Equality, Camilla@justequality.co.uk)

IL expertise:

  • Deinstitutionalisation
  • UN Convention on the Rights of Persons with Disabilities

Petri, Gabor (Hungary, National Federation of Organisations of Persons with a Physical Disability (MEOSZ), petri.gabor@gmail.com)

IL expertise:

  • IL movement and philosophy
  • Deinstitutionalisation
  • UN Convention on the Rights of Persons with Disabilities
  • Disability advocacy
  • Mental health services

Recent IL-related publications:

  • Petri, G., Beadle‐Brown, J., & Bradshaw, J. (2020). Redefining Self‐Advocacy: A Practice Theory‐Based Approach. Journal of Policy and Practice in Intellectual Disabilities, 17(3), 207-218. https://doi.org/10.1111/jppi.12343
  • Mladenov, T., & Petri, G. (2020). Critique of deinstitutionalisation in postsocialist Central and Eastern Europe. Disability & Society, 35(8), 1203-1226. https://doi.org/10.1080/09687599.2019.1680341

Rothenberg, Birgit (Germany, MOBILE-Selbstbestimmtes Leben Behinderter e.V., birgit.rothenberg@tu-dortmund.de)

IL expertise:

  • IL movement and philosophy
  • Deinstitutionalisation
  • Personal assistance and direct payments
  • History of independent living movement

Recent IL-related publications:

  • Rothenberg, B. (2012): Das Selbstbestimmt Leben-Prinzip und seine Bedeutung für das Hochschulstudium. Bad Heilbronn.
  • Rothenberg, B. & Köbsell, S. (2011): Die emanzipatorische Behindertenbewegung. In: Bois, M. & Hüttner, B. [Hrsg]: Beiträge zur Geschichte einer pluralen Linken – Heft 3. Bewegungen, Parteien, Ideen. Berlin, S. 24-28.

Ruzicic-Novkovic, Milica Mima (Serbia, Centre Living Upright, mimaczu@gmail.com)

IL expertise:

  • IL movement and philosophy
  • UN Convention on the Rights of Persons with Disabilities
  • Egality in public speech with focus on media portray of disabled persons

Recent IL-related publications:


Sándor, Anikó (Hungary, ELTE University Bárczi Gusztáv, Faculty of Special Needs Education, Institute for Disability and Social Participation, sandoraniko0411@gmail.com)

IL expertise:

  • Deinstitutionalisation
  • Personal assistance and direct payments
  • Self-determination of persons with high support needs

Recent IL-related publications:

  • Csilla Cserti-Szauer, Borbála Bányai, Vanda Katona, Anikó Sándor: Narratives of Struggle: Lifelong Guidance and Future Planning Alternatives for People with Disabilities in Hungary. http://dx.doi.org/10.31287/FT.en.2020.2.6

Sperrin, Aine (Ireland, Centre for Disability Law and Policy, NUI Galway, aine.sperrin@nuigalway.ie)

IL expertise:

  • IL movement and philosophy
  • Deinstitutionalisation
  • Personal assistance and direct payments
  • UN Convention on the Rights of Persons with Disabilities

Stefanovic, Lazar (Serbia/Austria, Vienna Forum for Democracy and Human Rights, lazar.stefanovic@humanrights.at)

IL expertise:

  • IL movement and philosophy
  • Deinstitutionalisation
  • UN Convention on the Rights of Persons with Disabilities

Recent IL-related publications:


Šumskienė, Eglė (Lithuania, Vilnius University, egle.sumskiene@fsf.vu.lt)

IL expertise:

  • IL movement and philosophy
  • Deinstitutionalisation
  • UN Convention on the Rights of Persons with Disabilities

Recent IL-related publications:


Todd, Zara (UK, independent researcher, zara.todd@gmail.com)

IL expertise:

  • IL movement and philosophy
  • UN Convention on the Rights of Persons with Disabilities
  • Disabled children’s rights
  • Participation and decision making

Villatoro-Bongiorno, Katja (España, Foro de Vida Independiente, katvibon@gmail.com)

IL expertise:

  • IL movement and philosophy
  • Personal assistance and direct payments
  • Nuevo paradigma: Diversidad Funcional, Empoderamiento

Woodin, Sarah (UK, University of Leeds / independent researcher, S.L.Woodin@Leeds.ac.uk)

IL expertise:

  • IL movement and philosophy
  • Deinstitutionalisation
  • Personal assistance and direct payments
  • Austerity
  • UN Convention on the Rights of Persons with Disabilities
  • New technologies

Recent IL-related publications:


Zaviršek, Darja (Slovenija, University of Ljubljana, darja.zavirsek@fsd.uni-lj.si)

IL expertise:

  • IL movement and philosophy
  • Deinstitutionalisation
  • Personal assistance and direct payments
  • UN Convention on the Rights of Persons with Disabilities
  • Women with disabilities, violence against women with disabilities

Recent IL-related publications:

  • Zaviršek, Darja  (2020), Mothering as a Human Rights Issue of Women with Disabilities in Current Post-Socialist Social Context. In: Anna Siri, Cinzia Leone, Rita Bencivenga, Darja Zaviršek, Sonja Bezjak: Women, Disability and Culture. NOVA, Medicine & Health, New York, pp. 245-278.
  • Zaviršek, Darja (2017), Delayed deinstitutionalisation in post-socialism. European Journal of Social Work, Vol 20: 6; Pages 834-845. Published online: 17 Jul 2017. https://doi.org/10.1080/13691457.2017.1344623
  • Zaviršek, Darja (2017), The rememberance viod of survivors of long-stay institutions during socialism. In: Mayrhofer, Hemma; Wolfgruber, Gudrun; Geiger, Katja; Hammerschick, Walter; Reidinger, Veronika eds. , Kinder und Jugendliche mit Behinderungen in der Wiener Psychiatrie von 1945 bis 1989. Band 8. LIT,  Wien. Pp. 603- 613.