Below, only ILRN members consenting to be publicly recognised are listed. For more information about the ILRN, please visit https://enil.eu/projects/independent-living-research-database/ or get in touch with Teodor Mladenov, ILRN Coordinator, at tmladenov001@dundee.ac.uk.
Alexa, Radu (Romania, Asociația Help and Advice, asociatia@helpandadvice.ro)
IL expertise:
- IL movement and philosophy
- UN Convention on the Rights of Persons with Disabilities
Angelova-Mladenova, Lilia (UK/Bulgaria, ENIL/independent researcher, lili.angelova@gmail.com)
IL expertise:
- IL movement and philosophy
- Deinstitutionalisation
- Personal assistance and direct payments
- UN Convention on the Rights of Persons with Disabilities
Recent IL-related publications:
- The Right to Live Independently and be Included in the Community: Addressing Barriers to Independent Living Across the Globe. Published by ENIL: http://enil.eu/wp-content/uploads/2017/06/The-right-to-live-independently_FINAL.pdf
Brennan, Ciara (Ireland, independent researcher, ciarasbrennan@gmail.com)
IL expertise:
- Deinstitutionalisation
- Personal assistance and direct payments
- UN Convention on the Rights of Persons with Disabilities
Recent IL-related publications:
Burns, Nicola (Scotland, University of Glasgow, nicola.burns@glasgow.ac.uk)
IL expertise:
- UN Convention on the Rights of Persons with Disabilities
Fernández, Andrés (Colombia, Fundación Grandes Transformaciones, andresfmf@yahoo.com)
IL expertise:
- IL movement and philosophy
- Personal assistance and direct payments
- UN Convention on the Rights of Persons with Disabilities
Flanagan, Ann Marie (Ireland, Clare Leader Forum, clareleaderforum@gmail.com)
IL expertise:
- IL movement and philosophy
- Deinstitutionalisation
- Personal assistance and direct payments
- UN Convention on the Rights of Persons with Disabilities
Grabher, Heinz (Austria, Persönliche Assistenz Vorarlberg, heinz.grabher@pa-vorarlberg.at)
IL expertise:
- Personal assistance and direct payments
Grdan, Kristijan (Germany, independent researcher, grdjan.kristijan@gmail.com)
IL expertise:
- Deinstitutionalisation
- UN Convention on the Rights of Persons with Disabilities
- Mental health laws
Griffiths, Miro (England, University of Leeds, m.griffiths1@leeds.ac.uk)
IL expertise:
- IL movement and philosophy
- Personal assistance and direct payments
- UN Convention on the Rights of Persons with Disabilities
Keravica, Rados (Serbia/UK, University of Leeds, radoskeravica@gmail.com)
IL expertise:
- Deinstitutionalisation
- UN Convention on the Rights of Persons with Disabilities
- Disabled children’s and young people’s participation in decision-making processes, legal capacity and supported decision-making
- UN Convention on the Rights of the Child
Recent IL-related publications:
- Rioux, M., Pinto, P.C., Wakene, D., Keravica, R. and Viera, J., Evidence-based participatory monitoring as a tool for social change. In The Routledge Handbook of Disability Activism. https://www.routledgehandbooks.com/doi/10.4324/9781351165082-30
- Marcia Rioux, DRPI The People’s Indicators: Evidence Based Participatory Indicators – Measuring Progressive Realization (Disability Rights Promotion International, York University 2017). https://drpi.research.yorku.ca/drpi-resources/drpi-the-peoples-indicators/
Meakin, Becki (UK, Shaping Our Lives, becki@shapingourlives.org.uk)
IL expertise:
- IL movement and philosophy
- UN Convention on the Rights of Persons with Disabilities
- Experiences of service users from marginalised communities
Recent IL-related publications:
- Behind Closed Doors: https://www.shapingourlives.org.uk/resources/our-resources/research-reports/behind-closed-doors-report-from-our-impacts-of-covid-19-project
- Locked In or Locked Out?: https://www.shapingourlives.org.uk/resources/our-resources/research-reports/locked-in-or-locked-out-report-from-our-covid-19-remote-technology-research-project
Mladenov, Teodor (Scotland/Bulgaria, University of Dundee, tmladenov001@dundee.ac.uk)
IL expertise:
- IL movement and philosophy
- Deinstitutionalisation
- Personal assistance and direct payments
- Austerity
- UN Convention on the Rights of Persons with Disabilities
- IL in the postsocialist region
Recent IL-related publications:
- Mladenov, T. and Brennan, C. (2021) ‘The global COVID-19 Disability Rights Monitor: implementation, findings, disability studies response’, Disability & Society, Vol. 36, No. 8, pp. 1356-1361. DOI: https://doi.org/10.1080/09687599.2021.1920371
- Mladenov, T. (2019) ‘What is good personal assistance made of? Results of a European survey’, Disability & Society, Vol. 30, No. 1, pp. 1-24. DOI: https://doi.org/10.1080/09687599.2019.1621740
Nally, Deirdre (Ireland, University of Limerick, deirdre.nally@ul.ie)
IL expertise:
- Personal assistance and direct payments
Recent IL-related publications:
- Nally, Deirdre, Sean S. Moore, and Rosemary Joan Gowran. “How governments manage personal assistance schemes in response to the United Nations Convention on the Rights of Persons with Disabilities: A Scoping Review.” Disability & Society (2021): 1-24. https://doi.org/10.1080/09687599.2021.1877114
Nikolin, Sanja (Serbia, Public and Private, publicandprivate.nikolin@gmail.com)
IL expertise:
- UN Convention on the Rights of Persons with Disabilities
O’Neill, Emma (Northern Ireland, Disability Action Northern Ireland, EmmaONeill@disabilityaction.org)
IL expertise:
- IL movement and philosophy
- Personal assistance and direct payments
- UN Convention on the Rights of Persons with Disabilities
Recent IL-related publications:
- O’Neill, E. & Fitzpatrick, F. (2020). Independent Living Fund Northern Ireland Impact Evaluation. Centre for Independent Living NI, Gauge Impact NI & Independent Living Fund Scotland. https://ilf.scot/wp-content/uploads/2020/07/44188-ILF-NI-Impact-Evaluation-Report.pdf
- Fitzsimons, S., Crawford, A. and O’Neill, E. (2020). The impact of Covid-19 for disabled people in Northern Ireland. Disability Action NI. https://www.disabilityaction.org/news/report-now-available-the-impact-of-covid-19-on-disabled-people-in-ni
Panayotova, Kapka (Bulgaria, Centre for Independent Living – Sofia, kapkapan@gmail.com)
IL expertise:
- IL movement and philosophy
- Deinstitutionalisation
- Personal assistance and direct payments
Parker, Camilla (UK, Just Equality, Camilla@justequality.co.uk)
IL expertise:
- Deinstitutionalisation
- UN Convention on the Rights of Persons with Disabilities
Petri, Gabor (Hungary, National Federation of Organisations of Persons with a Physical Disability (MEOSZ), petri.gabor@gmail.com)
IL expertise:
- IL movement and philosophy
- Deinstitutionalisation
- UN Convention on the Rights of Persons with Disabilities
- Disability advocacy
- Mental health services
Recent IL-related publications:
- Petri, G., Beadle‐Brown, J., & Bradshaw, J. (2020). Redefining Self‐Advocacy: A Practice Theory‐Based Approach. Journal of Policy and Practice in Intellectual Disabilities, 17(3), 207-218. https://doi.org/10.1111/jppi.12343
- Mladenov, T., & Petri, G. (2020). Critique of deinstitutionalisation in postsocialist Central and Eastern Europe. Disability & Society, 35(8), 1203-1226. https://doi.org/10.1080/09687599.2019.1680341
Rothenberg, Birgit (Germany, MOBILE-Selbstbestimmtes Leben Behinderter e.V., birgit.rothenberg@tu-dortmund.de)
IL expertise:
- IL movement and philosophy
- Deinstitutionalisation
- Personal assistance and direct payments
- History of independent living movement
Recent IL-related publications:
- Rothenberg, B. (2012): Das Selbstbestimmt Leben-Prinzip und seine Bedeutung für das Hochschulstudium. Bad Heilbronn.
- Rothenberg, B. & Köbsell, S. (2011): Die emanzipatorische Behindertenbewegung. In: Bois, M. & Hüttner, B. [Hrsg]: Beiträge zur Geschichte einer pluralen Linken – Heft 3. Bewegungen, Parteien, Ideen. Berlin, S. 24-28.
Ruzicic-Novkovic, Milica Mima (Serbia, Centre Living Upright, mimaczu@gmail.com)
IL expertise:
- IL movement and philosophy
- UN Convention on the Rights of Persons with Disabilities
- Egality in public speech with focus on media portray of disabled persons
Recent IL-related publications:
- https://www.czuns.org/gordana-rajkov-vying-for-a-choice-life-story/
- https://www.czuns.org/predstavljanje-osoba-sa-invaliditetom-u-medijskom-diskursu-srbije-1/
Sándor, Anikó (Hungary, ELTE University Bárczi Gusztáv, Faculty of Special Needs Education, Institute for Disability and Social Participation, sandoraniko0411@gmail.com)
IL expertise:
- Deinstitutionalisation
- Personal assistance and direct payments
- Self-determination of persons with high support needs
Recent IL-related publications:
- Csilla Cserti-Szauer, Borbála Bányai, Vanda Katona, Anikó Sándor: Narratives of Struggle: Lifelong Guidance and Future Planning Alternatives for People with Disabilities in Hungary. http://dx.doi.org/10.31287/FT.en.2020.2.6
Sperrin, Aine (Ireland, Centre for Disability Law and Policy, NUI Galway, aine.sperrin@nuigalway.ie)
IL expertise:
- IL movement and philosophy
- Deinstitutionalisation
- Personal assistance and direct payments
- UN Convention on the Rights of Persons with Disabilities
Stefanovic, Lazar (Serbia/Austria, Vienna Forum for Democracy and Human Rights, lazar.stefanovic@humanrights.at)
IL expertise:
- IL movement and philosophy
- Deinstitutionalisation
- UN Convention on the Rights of Persons with Disabilities
Recent IL-related publications:
- Stefanovic Lazar, Peric Sandra, Beker Kosana. Guidelines for Centers for Social Work (Smernice za centre za socijalni rad). 2020. MDRI-S. https://www.mdri-s.org/wp-content/uploads/2020/05/Smernice-za-centre.pdf
- Bulic Cojocariu Ines, Stefanovic Lazar. Handbook on EU funds (Priručnik o EU fondovima). 2020. MDRI-S. https://www.mdri-s.org/wp-content/uploads/2020/06/Prirucnik-o-EU-fondovima.pdf
Šumskienė, Eglė (Lithuania, Vilnius University, egle.sumskiene@fsf.vu.lt)
IL expertise:
- IL movement and philosophy
- Deinstitutionalisation
- UN Convention on the Rights of Persons with Disabilities
Recent IL-related publications:
- ‘Bridging yesterday and tomorrow: Responses to the new disability rights paradigm in the post-socialist region‘. E Šumskienė, V Gevorgianiene, R Geniene – Disability Studies Quarterly, 2021.
- ‘Implementation of CRPD in the Post-Soviet Region. Between imitation and authenticity’, by Egle Sumskiene, Violeta Gevorgieniene, Rasa Geniene. The Routledge Handbook of Disability Activism, edited by Maria Berghs, Tsitsi Chataika, Yahya El-Lahib, Kudakwashe Dube.
Todd, Zara (UK, independent researcher, zara.todd@gmail.com)
IL expertise:
- IL movement and philosophy
- UN Convention on the Rights of Persons with Disabilities
- Disabled children’s rights
- Participation and decision making
Villatoro-Bongiorno, Katja (España, Foro de Vida Independiente, katvibon@gmail.com)
IL expertise:
- IL movement and philosophy
- Personal assistance and direct payments
- Nuevo paradigma: Diversidad Funcional, Empoderamiento
Woodin, Sarah (UK, University of Leeds / independent researcher, S.L.Woodin@Leeds.ac.uk)
IL expertise:
- IL movement and philosophy
- Deinstitutionalisation
- Personal assistance and direct payments
- Austerity
- UN Convention on the Rights of Persons with Disabilities
- New technologies
Recent IL-related publications:
- Woodin, S. (2019) Article 33: National Implementation and Monitoring. Monitoring of the Rights of Blind and Partially-Sighted People in Europe: An Analysis of the European Blind Union CRPD Database. Paris: European Blind Union http://www.euroblind.org/sites/default/files/documents/article_33_2019_report2.pdf
- Woodin, S. (2017) Research with Disabled People: A Health Action Research Project with People with Learning Difficulties. Sage Research Methods Case Studies. DOI: http://dx.doi.org/10.4135/9781526421050