Invitation to the hearing in the European Parliament

January 20, 2012 under Disability Cuts in Europe, Human Rights, News

Thursday 9 February 2012 – European Parliament Brussels

15.00 – 18.30, Room A1G2

 

The European Network on Independent Living (ENIL) would like to invite you to a hearing in the European Parliament entitled ‘Defend the Right of Independent Living – How the EU’s Austerity Policy Is Undermining the Lives of People with Disabilities’. The hearing will take place on 9 February 2012 (15:00 – 18:30, Room A1G2), and will be hosted by the European United Left/Nordic Green Left Parliamentary Group.

ENIL and its partner organisations will present evidence about the impact austerity measures are having on people with disabilities in the European Union, and will set out actions that can be taken by the European Parliament and the European Commission to address this situation. These will include the ENIL Proposal for the European Parliament Resolution on the effect of cuts in public spending on services for persons with disabilities in the EU.

To register, please send an e-mail by 2 February 2012 to secretariat@enil.eu. In case you do not have access to the Parliament, please include your date of birth and passport number.

 

Download the Programme and the Poster.

 

See ENIL’s Proposal for a Resolution of the European Parliament on the effect of cuts in public spending on persons with disabilities in the European Union. (Available in 8 EU languages)

Help us to lobby EU politicians for our rights!

 

 

 

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ENIL Proposal for a new Resolution of the European Parliament UPDATED!

January 20, 2012 under Freedom Drive, IL activists, IL Materials, News

call to actionOn the occasion of 2011 Freedom Drive, ENIL launched a Proposal for a Resolution of the European Parliament on the effect of cuts in public spending on persons with disabilities in the European Union. This Resolution outlines measures that should be taken by the Member States, the European Council and the European Commission to ensure that cuts in public spending do not lead to further social exclusion and institutionalisation of people with disabilities. ENIL argues that doing so is everyone’s responsibility under the UN Convention on the Rights of Persons with Disabilities.

ENIL has received information from many of its members about the way cuts are affecting Independent Living services for people with disabilities, such as personal assistance and direct payments. Some of the examples are listed in the Background note accompanying the Proposal.

The Proposal was presented to Members of the European Parliament at the Disability Intergroup meeting on 15 September 2011. Following that, ENIL has continued with a series of lobbying activities, in order to get the needed support for the Resolution from MEPs. If you are in favour of the Resolution, we would like to encourage you to support us! Here are some of the things you can do:

  • Lobby your MEPs – send them a copy of the Proposed Resolution and write a letter; explain in a meeting why they should support the Proposed Resolution. (You can find the names and e-mails of your MEPs here)
  • Approach other organisations in your country and ask them to join your lobbying activities;
  • Carry out awareness-raising activities among other people with disabilities and the wider public, on the effect of cuts on Independent Living;
  • If you have been affected by the cuts, please let us know and we can bring this to the attention of MEPs during our lobbying activities;
  • Check http://www.enil.eu for updates and other ways to get involved.

For more information, please contact Ines Bulic, ENIL Policy officer and Regional Teams Manager at ines.bulic@enil.eu.

Download the full text of the proposal in English (DOC)

Download the Background note in English (DOC) 

Another EU Languages:

Full text of the proposal in Swedish (DOC)

Full text of the proposal in Bulgarian (DOC)

Full text of the proposal in Norwegian (DOC)

Full text of the proposal in Greek (DOC)

Full text of the proposal in German (DOC)

Full text of the proposal in Czech (DOC)

Full text of the proposal in Spanish (DOC)

Full text of the proposal in Slovenian (DOC)

Background note in Slovenian (DOC)

if you cannot find your language and you are interested in collaborate with the translation, please contact us: secretariat@enil.eu

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ENIL present in the discussion of Swedish Personal Assistance Law and Independent Living Monday at International Summit on Accessibility in Vienna

January 20, 2012 under Human Rights, press release

200 international politicians, NGO representatives, people with disability and academics gather at the Zero Conference in Vienna (Zero = no barriers).

On January 22 and 23, 2012 the International Conference on Good Policies for Persons with Disabilities takes place for the first time in Vienna, Austria. It is part of the Zero Project – zero as in zero barriers over 250 stakeholders from all over the world. Future legislation for a better world is the main theme. The conference is organised by the Essl Foundation in cooperation with the World Future Council and its founder Jakob von Uexkull, as well as by UniCredit Bank Austria.

One of eight selected laws: the Swedish Act Concerning Support and Service to Persons with Certain Functional Impairments

Already since 1993 Sweden legally entitles persons with extensive disabilities to cash payments for the purchase of self-directed personal assistance services. The Act concerning Support and Service to Persons with Certain Functional Impairments sets out the right for persons with considerable and permanent functional impairments to “good” as opposed to basic living conditions through the provision of ten measures for special support. One of the measures constitutes the right to personal assistance, setting the foundation for a demand-driven and competitive personal assistance market.

“Independent Living means having the same range of options and the same degree of self-determination that non-disabled people take for granted,” explains Adolf Ratzka, Founder of the Institute on Independent Living. “The Act needs to be further developed: recent restrictive court interpretations highlight the need for re-formulating its original intent and to expand its scope. Especially during the present European Year for Solidarity amongst Generations and Active Ageing we need to promote a wider independence of elderly people from institutionalized living.”

Click here to read more.. »

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Save the date: Online seminars on the UNCRPD

The Scottish Human Rights Commission and the Equality and Human Rights Commission are holding a series of free online seminars about how the UN Disability Convention relates to what disabled people have told the Commission’s are the main barriers remaining to allow disabled people in Scotland to enjoy the full range of rights to which they are entitled. The first of these took place in December and you can watch or listen to a recording of the seminar.

 

The next seminar will take place on Monday 16 January and will discuss ‘Getting Justice’. The guest speaker will be from the Legal Services Agency and the seminar will cover some of the evidence disabled people have already told the Commission’s about access to justice – such as concerns from learning disabled people about using and accessing the court system, fears about reporting harassment and alternatives to court action – then the seminar will outline what the Convention says about access to justice and about how the Convention could be used in Scotland. During the discussion you can ask questions, suggest action that needs to be taken and share your own experiences. Click here to read more.. »

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The photograph book by Hallgrímur Guðmundsson and The Independent Living centre in Iceland

January 3, 2012 under Good Examples, IL ORGANIZATIONS, NRT

Disabled people are often seen as sick, abnormal and broken and are therefore excluded from having basic human rights to inclusive education, work opportunities on the open labour market, move away from home, have a family, participate in politics, travel overseas and enjoy culture and leisure. This leads to disabled people being unseen and excluded and making it difficult to have impact on society’s attitudes and fight for equal rights. The situation of disabled people therefore becomes the object of professionals and media that often present disabled people as heroes or victims. Heroes for a simple thing as waking up in the morning or victims because of the “terrible destiny” of not being able to walk, see and hear or having an IQ that is socially accepted.

 

The Independent Living Centre in Iceland, which is a personal assistance cooperative run and controlled by disabled people, has decided to take responsibility and take action for change and will publish a photograph book named Frjáls/Free on the 10th of December, which is the international day for human rights. Click here to read more.. »

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The ”JAG-model”. Personal assistance with self-determination

January 2, 2012 under Good Examples, IL Materials, NRT, UNCRPD

The “JAG-model” – A description of how you can organize personal assistance with self-determination when you have multiple, severe disabilities and limited autonomy.

Download the document Pa-manual_ENG

 

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How the media is demonising Disabled People in Europe

December 19, 2011 under Bad Practice, Human Rights, News

Extract from the article ‘How the media is demonising Disabled People in Europe’  by Debbie Jolly

‘Disabled people in Europe are losing their battle in the fight for disability rights. While some countries have problems making their governments understand that assistance is needed for the extra costs of disability for independent living, P.A.s, and self determination, in other parts of Europe unfair financial cuts to disability assistance and support are being backed up by a campaign in the media showing disabled people as unworthy of the support they receive. The media do this by calling disabled people frauds.

This is happening at a time when states in Europe are looking for savings in their budgets. In the UK such media stories are being wrongly supported by government ministers who often add a quote saying how shocked they are that so many disabled people are fraudulent, but all are contributing to a myth that is having severe negative implications on disabled peoples’ lives.’

Download full report:

DOC Format

PDF Format

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ENIL Hearing on Cuts at the European Parliament

Save the Date!

9 February 2012, European Parliament

 

On 9 February 2012 ENIL is holding a hearing at the European Parliament entitled ‘Defend the Right of Independent Living – How the EU’s Austerity Policy Is Undermining the Lives of People with Disabilities’. The hearing is hosted by the European United Left / Nordic Green Left Parliamentary Group.

 

ENIL and its partner organisations will use the hearing to present evidence about the impact austerity measures are having on people with disabilities in the EU, and will set out actions that can be taken by the European Parliament and the European Commission to address this situation. These will include the ENIL Proposal for the European Parliament Resolution on the effect of cuts in public spending on persons with disabilities in the EU.

 

The hearing will take place on 9 February, 15:00 – 18:30, at the European Parliament inBrussels. Programme will be available by the 15 January 2012. To register, please write to the ENIL Secretariat at secretariat@enil.eu (please include your nationality, date of birth and passport/ID number, so we can arrange your access into the Parliament). Unfortunately, ENIL cannot cover participants’ travel or accommodation costs.

 

Read the ENIL Proposal

DOC Format

PDF Format

 

Link to a related article: http://www.euractiv.com/socialeurope/europeans-disabilities-terrified-analysis-509471

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Recent reports

December 16, 2011 under Good Examples, UNCRPD

 

ENIL would like to raise awareness on the work and publications of ESSL. The Essl Family have been involved in social affairs for many years. The Essl Foundation was established in 2007 in order to consolidate the family’s social activities with the mission to remove barriers, especially for disadvantaged persons, and to work for a more just and equal society.
The Zero Project is a project of the Essl Foundation. It allows for a new approach to broad-based advocacy and the work to remove barriers. In 2010 the Essl Social published its Index Pilot Study. This was based on a survey done in cooperation with some 56 NGO organisations around the world on the legal situations and living conditions of persons with disabilities a comparison of social indicators in 15 different countries. The clear appraisal of inequalities and injustices has been found to be an efficient method of advocacy and a way to get the media as well as policymakers interested.

The most recent report can be found on the following website: http://www.zeroproject.org/

ENIL would also like to draw attention to a new guide for the monitoring process of the CRPD.

The guide was developed as part of a project of the Mental Health Initiative and the Law and Health Initiative of the Open Society Public Health Program. The Community for All guide and checklist offers a detailed look at the rights identified in the UN Convention on the Rights of Persons with Disabilities (CRPD), especially Article 19 of the CRPD. The guide and checklist can be used in advocacy work to oblige States to realize the rights. For downloading and more information see the website:

http://www.soros.org/initiatives/health/focus/mhi/articles_publications/publications/community-for-all-20111202

The first World report on disability, produced jointly by WHO and the World Bank, ” suggests that more than a billion people in the world today experience disability. 
People with disabilities have generally poorer health, lower education achievements, fewer economic opportunities and higher rates of poverty than people without disabilities. This is largely due to the lack of services available to them and the many obstacles they face in their everyday lives. The report provides the best available evidence about what works to overcome barriers to health care, rehabilitation, education, employment, and support services, and to create the environments which will enable people with disabilities to flourish. The report ends with a concrete set of recommended actions for governments and their partners. 
This pioneering World report on disability will make a significant contribution to implementation of the Convention on the Rights of Persons with Disabilities. At the intersection of public health, human rights and development, the report is set to become a “must have” resource for policy-makers, service providers, professionals, and advocates for people with disabilities and their families.”

http://www.who.int/disabilities/world_report/2011/en/index.html

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Jim Mansell Recognised for Outstanding Contribution to Social Care

December 16, 2011 under Good Examples, News

Jim Mansell, Emeritus Professor of Learning Disability at the Tizard Centre at the University of Kent, and a member of the Advisory Council of the European Coalition for Community Living (ECCL), was awarded the SCIE Knowledge Award for Outstanding Contribution to Knowledge in Social Care for 2011.

 

The UK’s Social Care Institute for Excellence (SCIE) used its Tenth Anniversary celebration in November to recognise Prof. Mansell’s contribution to knowledge in social care and the impact his work has had on improving the quality of social care provision.

 

ENIL would like to congratulate Jim on winning this important award!

 

Further information: http://www.scie.org.uk/publications/corporate/tenth-anniversary/scie-knowledge-award.asp

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