Freedom of Movement Campaign: Launch of the Freedom Guide

February 23, 2012 under Uncategorized

On the 29th of February the Freedom of Movement Campaign are launching the Freedom Guide, in the European Parliament in Brussels.

Freedom of movement between member states by European citizens is one of the cornerstones of the European Union. The Freedom of Movement Campaign seeks to remove the barriers that people with disabilities in Europe face so that we too can fully enjoy and benefit from free movement as European citizens.

The ‘Freedom Guide’ is one of the first outcomes of the Freedom of Movement Campaign. This publication combines information from people in the disability movement, experts from NGO’s and academics in relation to how Europe should be accessible and the way in which to do this. As the European Commission is in the process of working on the Accessibility Act, this Freedom Guide is a great resource of information for the European Union to creative an effective Accessibility Act.

The ‘Freedom Guide’ will be launched during a cocktail reception, organised jointly by the European Parliament Disability Intergroup and the European Disability Forum, on the 29th February 2012 at 19.00hr in the Members Private Salon, European Parliament, Brussels. If you wish to attend this event and need a visitor’s pass to access the parliament, please email aurelien.dayde@edf-feph.org  before the Wednesday 22 February 2012 to register your interest.

The ‘Freedom Guide’ will also be presented in Copenhagen at the Presidency Conference on Accessibility which takes place 5th -6th March 2012.

Links:

View the Freedom guide here (or click on the image)

Find out more information about European Disability Forum at their website

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Updated Version: The ”JAG-model”. Manual on personal assistance with self-determination

February 23, 2012 under Good Examples, IL Materials, NRT, UNCRPD

The “JAG-model” – A description of how you can organize personal assistance with self-determination when you have multiple, severe disabilities and limited autonomy.

Download the document Pa-manual_ENG

 

 

 

 

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DPAC: Letter warns Government that Scrapping ILF would ‘wreck lives’

Campaigners have handed the government a letter signed by hundreds of user-led organisations and disabled activists, in an effort to save the Independent Living Fund (ILF).

The letter, written by the campaign group Disabled People Against Cuts (DPAC), warns that scrapping ILF would “wreck disabled people’s lives” and push them into residential institutions rather than allowing them to live independently in the community. Click here to read more.. »

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Photos!

February 23, 2012 under News

We are currently in the process of reorganising the ENIL website and want to include more photos on the site. If anyone has high resolution photos of the any of ENIL events such as the Strasburg Freedom Drive that they have attended, please send them to this email address secretariat@enil.eu Thanks!

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Reminder: Free online seminars on UNCRPD

The Scottish Human Rights Commission (SHRC) and the Equality and Human Rights Commission (EHRC) are hosting a series of four free online seminars. The aim of these seminars is to relate the Disability Convention to what people with disabilities in Scotland have said are the key issues that they face. To date three seminars have taken place; “Rights in a Recession”, “Getting Justice” and the third one on “ Independent Living”.

The third one on ‘Independent Living’ was presented by Independent Living Scotland and the SHRC. This seminar focussed on what the Convention says about Independent Living. It then moved on to give an overview of Independent Living Scotland and it’s history. Finally, it looked at Independent Living and human rights and how to make these rights a reality.

Recording of the seminar of 13th February 2012 about Independent Living, with Pam Duncan from the Independent Living in Scotland Project

The last seminar in the series is on the 12th March 2012, focusing ‘Children and Young people’ and will be streamed live between 12-1.00pm GMT. lt will also be available online after the seminar finishes.

All these seminars are still available online for free along with the presentation slides used in the seminars.

Links:

http://www.scottishhumanrights.com/ourwork/crpd/seminar

www.ilis.co.uk

Follow them on twitter:

@Scothumanrights

@EHRC

     @ilisproject

 

Vanessa Scanlon

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Spotlight: Hearing in the European Parliament: “Defend the Right of Independent Living – How the EU’s austerity policy is undermining the lives of people with disabilities.”

On the 9th February 2012 ENIL and the European parliamentary group GUE/NGL (European United Left/Nordic Green Left) held a hearing in the European Parliament. The purpose of this hearing was to show from a number of perspectives how people with disabilities are being negatively affected by the EU current austerity policies. This is the first time that ENIL has held a hearing in the European Parliament. ENIL presented its ‘Proposal for a European Parliament Resolution’ on the effect of the cuts. The hearing was received positively in the European Parliament and three Members of the Parliament participated in the hearing, Kartika Liotard, MEP, Netherlands, Cecilia Wikstrom, MEP, Sweden and Paul Murphy, MEP, Ireland. The hearing was streamed live and there was up to two hundred people watching online throughout the hearing, with approximately eighty people in the Parliament itself.

The hearing began on a optimistic tone with MEP Cecilia Wikstrom’s opening address in which she made it clear that the although the financial climate is affecting every faction of society that hope is necessary at this time.

Panel 1: Understanding the impact of austerity measures on persons with disabilities

The hearing was in two parts with two different panels. Understanding the impact of the austerity measures on persons with disabilities was the focus of the first panel. Throughout this first panel, four themes emerged; (a) disability and policy, (b) de-institutionalisation, (c) disability and the media and (d) individual accounts that were shared.

(a)   Disability and Policy: Since the financial crisis there has been an impact on the way in which policy has been implemented, interpreted and devised. One of the most important issues raised by Prof. Alan Roulstone (Expert on global and European disability policy)  was that short term cuts often ignore the long term benefits. These policy decisions do not just have economical effect, but social and political effects. John Evans OBE ( Advisory Board member of ENIL)  noted that throughout this financial crisis, it is the welfare systems that have been hit hardest and further reductions would increase poverty. He pointed out that many of these cuts have been made without any dialogue between governments and those whose benefits they are cutting. John Evans further argued, Independent Living has positively changed people’s lives, however some people are now struggling to survive. Click here to read more.. »

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Collaboration request for INNOSERV project – report good examples of social innovation

February 1, 2012 marks the beginning of the Social platform on innovative social services or the INNOSERV Project  funded under the European Commission’s Seventh framework programme.  The Project is a unique opportunity for the identification and acknowledgement of innovative services that generate postive outcomes from a service user perspective.  ENIL has found it important to make our voices heard in order for this project to succeed and make a real difference for Independent Living.  We hope you will cooperate with us in this endeavor.

The Project is an attempt to survey the potential for innovative services in the health, education and welfare sectors. This by relying on a combination of academic/policy input, civil society perspectives and empirical knowledge.

Ultimately, information on selected innovative services will be diseminated broadly in easy to read formats that allows communication accross cultural and geographic boundaries, along with evaluation of policy making trends.  Together, practical examples and an overview of academic research will provide substantial input in the EU 2020 strategy.

Partners in implementation  of the project include reputable academic institutions and CSO networks in Europe: Heidelberg University, University of Applied Sciences Hamburg, University of Roskilde, Diakonhjemmet University College, Oslo, Budapest Institute, Instituto per la Ricerca Sociale, University of Southampton, Universite Paris, Pantheon-Sorbonne, European Association of Service Providers for Persons with Disabilities (EASPD), Solidar, and ENIL.

ENIL has through this project a pending task that requires support from the network:

The ENIL network must identify typical innovative practices from the fields of health, education and welfare. ENIL needs to provide at least 16 examples.  So If you have innovative service examples that you would like to share, please just contact us as soon as possible and no later than February 24, 2012, COB.

All questions regarding this initiative should be directed  to  Sanja Nikolin the ENIL researcher for the project at sanja.nikolin@multiservis.rs and please copy in Jamie Bolling  jamie.bolling@enil.eu the director of ENIL.

 

Thanks!

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Role model: Meet Jonas Franksson from Stockholm (Sweden)

February 19, 2012 under IL activists, NRT, Role Models

Jonas Franksson, 35, actor, journalist and debater, lives in Stockholm, Sweden, with wife and two kids. He works at the assistance cooperative STIL with advocacy and is also member of the board in STIL.

1998-2003 Jonas was director of the board in the Swedish Federation of Young Disabled. 2004 he won the Swedish Journalist Award as the renewal of the year for his participation in the TV-program CP-magasinet (“the Cerebral Palsy Show” in translation). He has, among a lot of other things, been involved in initiating the Accessibility March in Sweden.

 

• What is your personal experience of disability?
My disability is a natural part of me and has shaped me just as my background, my family and so on have. It has shaped my values and my approach to the extent that I often say that I am grateful that I have been blessed with a disability.

• How did you discover the Independent Living movement?
I live in Sweden, where the Independent Living movement became known in connection with personal assistance legislation nearly twenty years ago. But I was not involved until three years ago when the threats to the legislation became quite serious.

• Is there an area of Independent Living that you are especially interested in?
Since threats to personal assistance are so large in Sweden, I have to prioritise this issue.

• Who has influenced you the most, and how?
I’m most inspired by the black civil rights movement in the US and the ANC in South Africa and their struggle for equal rights together with a strong pride in who they were.

• Of what personal achievement are you most proud?
I’m proud of a lot, which can be good to remind yourself when it goes backwards. But the thing that has made the biggest impression is probably the TV series that I made. It was broadcast on national TV in Sweden in Spring 2004 and helped open the public’s eyes to our questions.

• Do you have a favourite saying or proverb?
It varies from month to month. Right now I am going through a period of much political activism and the old advertisement slogan “Just do it” fits pretty good.

• What motivates you to get up in the morning?
There is always something you can do to help the world become a better place

• What do you like to do when you’re not working?
Being with my children, listening to music and watching movies.

• If you could invite anyone to a dinner party, who would be your ideal guests?
Angela Davis has a high profile in the Black Power movement and is still active. I would pump her on strategies and listen to her experiences.

• What advice would you give to young adults with a disability?
Be proud of who you are, demand your rights and a life of freedom. Your disability is a positive thing, anyone who says otherwise is wrong, and their values must be resisted.

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Regional conference on independent living held in Trieste (Italy)

February 19, 2012 under IL activists, News

http://www.yhd-drustvo.si/Last 14th December 2011 in Trieste (Italy) was held a conference on IL, ENIL was represented there, here you have the report written by Danči Maraž from YHD:

“YHD (Elena Pečarič and Danči Maraž) attended this event as ENIL regional coordinator for Eastern Europe. The conference was mainly attended by PA users from the north east of Italy and was organised by Stefano Baldini from the organisation Lasfida. At the event was also a member of the evaluation commission for the region of Friuli Venezia Gulia, responsible for deciding how many hours of personal assistance an individual can have. Stefano Baldini on behalf of Lasfida and Elisabeta Gasparini from the region of Veneto presented their views on implementing personal assistance in everyday life. The representative from the evaluation commission presented the systems and procedures they use to decide how many hours assistance an individual can get, the value of the individual budget to pay for the assistance and the level and range of services provided according to regional legislation on Independent Living.

 

In Italy there are big differences between personal assistance services in different areas because each region adopts its own Law on Independent Living and personal assistance. Regions are responsible for providing for and financing personal assistance. Their system works with personal budgets.

Click here to read more.. »

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Human rights in Stockholm

February 19, 2012 under Human Rights, News, NRT

Morten Kjaerum, director of the EU Agency for Fundamental rights (FRA) Photo: Justine Balagadde

Last week Morten Kjaerum, director of the European Union Agency for Fundamental rights (FRA), came to Stockholm for two days to meet with ministers, officials and local NGOs working in the field of fundamental rights.

ENIL had the chance to meet with Morten twice during his visit. At first there was a meeting arranged in partnership with the Centre Against Racism. ENIL was represented through Erik Ljungberg, from the ENIL board, Johan Petersjö, a member of JAG and Kerstin Sellin, coordinator for ENIL activities in northern Europe.

AT the meeting Kerstin stressed that fine words cost nothing, but human rights must be paid for.

– To ratify the UN convention is free, but for accessibility and personal assistance you have to dedicate resources, she said.

Photo: Justine Balagadde

Later in the afternoon ENIL was exclusively invited as “FRA associates” to discuss possible future joint working on FRA related events in Sweden. Erik and Kerstin took part in this meeting, held at the ministry of enterprise.

As a part of the FRA advisory board, ENILs director Jamie Bolling was originally invited to the meetings but she was unable to attend.

 

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